Empowering psoriasis shared decision-making (SDM) with digital tools

Introduction: Psoriasis affects 3% of adults in the United States (US), and more than 50% of patients do not adhere to their treatment regimens, which can contribute to persistent disease. To improve adherence, the American Academy of Dermatology and National Psoriasis Foundation recommend SDM, an approach to care in which patients collaborate with their healthcare providers (HCPs) to reach consensus on an evidence-based treatment plan consistent with their values and preferences. SDM improves patient outcomes, treatment adherence, and satisfaction in dermatology and other disease areas. However, for a complex disease like psoriasis, it is challenging to implement SDM during a typical dermatology appointment. Psoriasis is an inflammatory immune-mediated skin disease with considerable comorbidities that impact physical health and quality of life, and 30% of people with psoriasis develop psoriatic arthritis. Treatment options range from noninvasive topicals and ultraviolet phototherapy to oral systemic agents and biologics. Integrating SDM tools for psoriasis into the electronic health record (EHR) could facilitate SDM throughout the dermatology clinical workflow; however, there is limited evidence from the US. Methods: ADCS practices and UCB partnered to develop an EHR-integrated digital tool that begins the SDM process by collecting patient-reported outcomes in advance of a clinic visit. A pilot study was conducted at ADCS from November 20, 2025, to May 25, 2026. Before a dermatology consultation, patients with psoriasis used a mobile-friendly application to assess symptoms, treatment goals, preferences, and information needs to receive tailored education. Clinicians accessed patient-reported outcomes through an EHR-integrated report to inform treatment planning and streamline conversations at the point of care. To assess the tool’s impact on clinical decision-making and care quality, patients and HCPs completed an SDM satisfaction survey after each clinic visit. Responses were yes/no or scored on a scale from 0=strongly disagree to 4=strongly agree. Results: 321 patients completed the SDM questionnaire and 73 completed the satisfaction survey. 14 HCPs completed the satisfaction survey for 251 visits. Analysis is underway. Results will be reported upon completion. Preliminary satisfaction survey results are shared here. Patients reported that SDM improved confidence in their treatment plan (mean=3.0, standard deviation [SD]=1.3), and they were likely to recommend SDM to other patients (mean=2.7, SD=1.4). HCPs referenced the SDM report during 72.9% of visits and rated it as helpful (mean=2.4, SD=1.6). HCPs reported that SDM supported education (86.9%), informed decisions about a new treatment option (27.3%), and changes to the treatment plan (25.7%). Conclusions: By integrating patient-reported outcomes and tailored educational resources into the clinical workflow, this digital solution may help facilitate SDM and support more effective, patient-centered psoriasis care.