Caregiving Challenges Across the Treatment and Recovery Trajectory of Patients Undergoing Oesophageal Cancer Surgery: A Longitudinal Qualitative Study Guided by the Timing It Right Framework

AIMS: To explore caregiving challenges experienced by family caregivers of patients undergoing oesophageal cancer surgery across different stages of the treatment and recovery trajectory and how these challenges evolve over time. DESIGN: A longitudinal qualitative study guided by the timing it right framework. METHODS: Guided by the Timing It Right Framework, this descriptive qualitative study used semi-structured interviews with 17 primary family caregivers of patients undergoing oesophageal cancer surgery. Data were analysed using thematic analysis. RESULTS: Caregiving challenges varied across stages and evolved dynamically. Five stage-specific patterns were identified: admission and treatment-planning, emotional shock, disclosure challenges, and treatment decision-making difficulties; preoperative, concerns about surgical tolerance, psychological burden, and surgical safety; postoperative, difficulties meeting care needs, limited caregiving knowledge and skills, and physical and psychosocial strain; hospital-to-home transition, difficulties obtaining care knowledge, nutritional management challenges, and difficulties responding to negative emotions and social withdrawal; and longer-term adjustment, increasing time commitment, financial pressure, fear of recurrence, and anticipatory grief. CONCLUSION: Caregiving challenges change throughout the disease trajectory. Nurses should provide continuous, stage-specific support that addresses caregivers' evolving informational, practical, psychological, and social needs. IMPLICATIONS FOR THE PROFESSION AND/OR PATIENT CARE: Stage-specific assessment, education, and support may help nurses address caregivers' changing needs during cancer treatment and recovery. IMPACT: This study highlights the stage-specific and dynamic nature of caregiving challenges across the oesophageal cancer treatment and recovery trajectory. PATIENT OR PUBLIC CONTRIBUTION: No patient or public involvement.

Authors

Institutions

Publication Details

Journal
Journal of Clinical Nursing
Published
2026-11-10
DOI
https://doi.org/10.1111/jocn.70632
Primary Topic
Nursing care and research
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
NOV
article

Caregiving Challenges Across the Treatment and Recovery Trajectory of Patients Undergoing Oesophageal Cancer Surgery: A Longitudinal Qualitative Study Guided by the Timing It Right Framework

Zhie Gu, Yusheng Shu, Yixin Jia, Quan Mao et al.
Journal of Clinical Nursing
Nursing care and research
article

Caregiving Challenges Across the Treatment and Recovery Trajectory of Patients Undergoing Oesophageal Cancer Surgery: A Longitudinal Qualitative Study Guided by the Timing It Right Framework

Zhie Gu, Yusheng Shu, Yixin Jia, Quan Mao, Xingyu Liu, Fan Wang
article en

Abstract

AIMS: To explore caregiving challenges experienced by family caregivers of patients undergoing oesophageal cancer surgery across different stages of the treatment and recovery trajectory and how these challenges evolve over time. DESIGN: A longitudinal qualitative study guided by the timing it right framework. METHODS: Guided by the Timing It Right Framework, this descriptive qualitative study used semi-structured interviews with 17 primary family caregivers of patients undergoing oesophageal cancer surgery. Data were analysed using thematic analysis. RESULTS: Caregiving challenges varied across stages and evolved dynamically. Five stage-specific patterns were identified: admission and treatment-planning, emotional shock, disclosure challenges, and treatment decision-making difficulties; preoperative, concerns about surgical tolerance, psychological burden, and surgical safety; postoperative, difficulties meeting care needs, limited caregiving knowledge and skills, and physical and psychosocial strain; hospital-to-home transition, difficulties obtaining care knowledge, nutritional management challenges, and difficulties responding to negative emotions and social withdrawal; and longer-term adjustment, increasing time commitment, financial pressure, fear of recurrence, and anticipatory grief. CONCLUSION: Caregiving challenges change throughout the disease trajectory. Nurses should provide continuous, stage-specific support that addresses caregivers' evolving informational, practical, psychological, and social needs. IMPLICATIONS FOR THE PROFESSION AND/OR PATIENT CARE: Stage-specific assessment, education, and support may help nurses address caregivers' changing needs during cancer treatment and recovery. IMPACT: This study highlights the stage-specific and dynamic nature of caregiving challenges across the oesophageal cancer treatment and recovery trajectory. PATIENT OR PUBLIC CONTRIBUTION: No patient or public involvement.

Journal of Clinical Nursing
Northern Jiangsu People's Hospital (CN), Yangzhou University (CN)
Nursing care and research
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.

Laika access coming soon