Community-based organizations’ experiences in using a digital resource referral platform (ConnectedNest) to support cancer patients

Abstract Background Over 8 million US patients with cancer experience health-related social needs (HSRNs) (e.g., food, transportation). Despite the clear importance of addressing HRSNs, there remains a gap in the IT-infrastructure allowing providers to monitor and facilitate patient connections to external resources. We created a community resource referral platform (ConnectedNest) to help connect cancer survivors with community-based organizations (CBOs). The goal of this study was to better understand the feasibility of implementing CRRPs into cancer-focused CBOs. Methods After piloting ConnectedNest, we invited 13 CBOs to participate in semi-structured interviews to learn from their experience. Two qualitative researchers used a directed content analysis approach to identify insights and key recommendations for improving engagement based on constructs from the RE-AIM Framework. Results We identified barriers and facilitators describing their (1) adoption of the ConnectedNest technology, (2) reach of clients, (3) implementation of ConnectedNest, and (4) long-term maintenance of the technology. CBOs varied in both in their organization’s programming and target populations. Participants reported alignment between ConnectedNest workflows and organizational roles as key factors for implementation success. All CBOs expressed interest in continuing to use ConnectedNest. Key recommendations include improving data integration and enhancing the caregiver-user experience. Discussion CBO programming breadth and the size of their target client population largely determined their experience during the pilot study. Community resource referral platforms can support CBOs by clearly distinguishing unique programs and eligibility requirements within the platform. Conclusion Community resource referral platforms have potential acceptability among cancer-focused CBOs. Co-creators see the potential value of these tools.