D7.1. Patient engagement activities and guidelines
A set of guidelines and lay papers to help engaging cancer patients and caregivers across diseases. This deliverable presents the SPARC patient guide, Understanding PersonalisedCancer Medicine. The guide is written for people living with cancer, their families and carers. It explains personalised cancer medicine in clear, accessible language, so that readers can understand their options and take part in discussions about their care. The guide follows the care journey, from diagnosis through treatment, including living with ongoing cancer and life after treatment. The guide also lists European patient organisations that offer more detailed information and support for specific cancer types, including the cancers that SPARC focuses on.
Authors
- Clare Williams (ORCID: https://orcid.org/0000-0001-9446-0339)
- Alba López Rioja (ORCID: https://orcid.org/0000-0002-2893-7087)
- Manuel Ottaviano (ORCID: https://orcid.org/0000-0003-0002-4988)
- Gilles Vassal (ORCID: https://orcid.org/0000-0003-1780-8869)
- Polina Starchenko
- Cristina Muntañola-Valero (ORCID: https://orcid.org/0000-0002-8577-2805)
- Lauren Anderson
- Cristian Comolli
Institutions
- European Society for Paediatric Oncology (BE)
- Vall d'Hebron Institute of Oncology (ES)
- Universidad Politécnica de Madrid (ES)
Publication Details
- Journal
- Zenodo (CERN European Organization for Nuclear Research)
- Published
- 2026-11-06
- DOI
- https://doi.org/10.5281/zenodo.24011391
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 0.00