D7.1. Patient engagement activities and guidelines

A set of guidelines and lay papers to help engaging cancer patients and caregivers across diseases. This deliverable presents the SPARC patient guide, Understanding PersonalisedCancer Medicine. The guide is written for people living with cancer, their families and carers. It explains personalised cancer medicine in clear, accessible language, so that readers can understand their options and take part in discussions about their care. The guide follows the care journey, from diagnosis through treatment, including living with ongoing cancer and life after treatment. The guide also lists European patient organisations that offer more detailed information and support for specific cancer types, including the cancers that SPARC focuses on.

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Publication Details

Journal
Zenodo (CERN European Organization for Nuclear Research)
Published
2026-11-06
DOI
https://doi.org/10.5281/zenodo.24011391
Primary Topic
Mental Health and Patient Involvement
Type
article
Field-Weighted Citation Impact
0.00
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article

D7.1. Patient engagement activities and guidelines

Clare Williams, Alba López Rioja, Manuel Ottaviano, Gilles Vassal et al.
1 links
Zenodo (CERN European Organization for Nuclear Research)
Mental Health and Patient Involvement
article

D7.1. Patient engagement activities and guidelines

Clare Williams, Alba López Rioja, Manuel Ottaviano, Gilles Vassal, Polina Starchenko, Cristina Muntañola-Valero, Lauren Anderson, Cristian Comolli
article en

Abstract

A set of guidelines and lay papers to help engaging cancer patients and caregivers across diseases. This deliverable presents the SPARC patient guide, Understanding PersonalisedCancer Medicine. The guide is written for people living with cancer, their families and carers. It explains personalised cancer medicine in clear, accessible language, so that readers can understand their options and take part in discussions about their care. The guide follows the care journey, from diagnosis through treatment, including living with ongoing cancer and life after treatment. The guide also lists European patient organisations that offer more detailed information and support for specific cancer types, including the cancers that SPARC focuses on.

Zenodo (CERN European Organization for Nuclear Research)
European Society for Paediatric Oncology (BE), Vall d'Hebron Institute of Oncology (ES), Universidad Politécnica de Madrid (ES)
Good health and well-being
Openalex Percentile: Top 12%
Mental Health and Patient Involvement
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