Blind spots in Australian bipolar disorder surveillance: Limitations of population-based and consumer needs surveys

Population-based surveys provide a critical means of characterising the prevalence, burden, lived experience, service use and unmet needs associated with bipolar disorder, including among people who may not be engaged with formal healthcare services. However, existing Australian survey efforts are often cross-sectional, outdated and affected by important sampling and ascertainment biases. Administrative and linked datasets can provide complementary information on service use and outcomes, but their reach is constrained by the absence of an integrated national data system and their reliance on contact with health and other services. Consequently, current surveillance approaches provide an incomplete picture of bipolar disorder in Australia. Despite its considerable burden, substantial unmet need persists in diagnosis, treatment and service provision, even though many people with bipolar disorder can achieve recovery with timely and appropriate care. In this Perspectives-Viewpoint article, we argue that more inclusive, longitudinal and co-designed national surveillance is needed to accurately characterise bipolar disorder and generate the evidence required to guide investment, service planning and reform.

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Publication Details

Journal
Australian & New Zealand Journal of Psychiatry
Published
2026-11-03
DOI
https://doi.org/10.1177/00048674261496096
Primary Topic
Bipolar Disorder and Treatment
Type
article
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article

Blind spots in Australian bipolar disorder surveillance: Limitations of population-based and consumer needs surveys

Cathrine Mihalopoulos, Craig A Macneil, Sue Cotton, Lesley Berk et al.
Australian & New Zealand Journal of Psychiatry
Bipolar Disorder and Treatment
article

Blind spots in Australian bipolar disorder surveillance: Limitations of population-based and consumer needs surveys

Cathrine Mihalopoulos, Craig A Macneil, Sue Cotton, Lesley Berk, Frank Iorfino, Aswin Ratheesh, Tania Perich, Olivia May Dean, Emma E. Morton, Mary Lou Chatterton, Christopher G. Davey, Lana J. Williams, Patrick D. McGorry, Ian Bernard Hickie, Ken R. Walder, Elizabeth M. Scott, Tamsyn E. Van Rheenen, Michael P. Berk, Jacob J. Crouse, Alison Ruth Yung, Greg Murray, Melissa K Hasty, Kate Filia, Philip Bowden Mitchell, Rebecca Fitton
article en

Abstract

Population-based surveys provide a critical means of characterising the prevalence, burden, lived experience, service use and unmet needs associated with bipolar disorder, including among people who may not be engaged with formal healthcare services. However, existing Australian survey efforts are often cross-sectional, outdated and affected by important sampling and ascertainment biases. Administrative and linked datasets can provide complementary information on service use and outcomes, but their reach is constrained by the absence of an integrated national data system and their reliance on contact with health and other services. Consequently, current surveillance approaches provide an incomplete picture of bipolar disorder in Australia. Despite its considerable burden, substantial unmet need persists in diagnosis, treatment and service provision, even though many people with bipolar disorder can achieve recovery with timely and appropriate care. In this Perspectives-Viewpoint article, we argue that more inclusive, longitudinal and co-designed national surveillance is needed to accurately characterise bipolar disorder and generate the evidence required to guide investment, service planning and reform.

Australian & New Zealand Journal of Psychiatry
The University of Sydney (AU), Barwon Health (AU), Deakin University (AU), The University of Melbourne (AU), Florey Institute of Neuroscience and Mental Health (AU), University of Manchester (GB), UNSW Sydney (AU), Orygen Youth Health (AU), Monash University (AU), Swinburne University of Technology (AU), Western Sydney University (AU)
Openalex Percentile: Top 14%
Bipolar Disorder and Treatment
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