Learning from deaths to improve lives: why England still needs a national LeDeR programme
The National Health Service England's Learning from Lives and Deaths of People with a Learning Disability and Autistic People programme is the world's only national mortality review system for people with intellectual disability. Abandoning national mortality surveillance risks making preventable deaths less visible, with profound consequences for equity in healthcare.
Authors
- Jacqui Shurlock (ORCID: https://orcid.org/0000-0003-4325-2833)
- Regi Alexander (ORCID: https://orcid.org/0000-0002-3554-2948)
- Rory Sheehan (ORCID: https://orcid.org/0000-0002-4164-9661)
- Samuel Joseph Tromans (ORCID: https://orcid.org/0000-0002-0783-285X)
- Bhathika Perera (ORCID: https://orcid.org/0000-0001-9316-9312)
- Indermeet Sawhney (ORCID: https://orcid.org/0000-0003-4203-9897)
- Vivien Cooper (ORCID: https://orcid.org/0000-0001-8484-0864)
- André Strydom (ORCID: https://orcid.org/0000-0002-2502-6704)
- Jana de Villiers (ORCID: https://orcid.org/0009-0005-8658-7061)
- Richard A. Laugharne (ORCID: https://orcid.org/0000-0001-9916-343X)
- Sheila C. Hollins (ORCID: https://orcid.org/0000-0001-5508-406X)
- Ashok Roy (ORCID: https://orcid.org/0000-0002-8432-981X)
- Rohit Shankar (ORCID: https://orcid.org/0000-0002-1183-6933)
- Matthew Hill
- Jackie O’Sullivan
Institutions
- University of Leicester (GB)
- St George's, University of London (GB)
- King's College London (GB)
- Hertfordshire Partnership University NHS Foundation Trust (GB)
- Coventry and Warwickshire Partnership NHS Trust (GB)
- Parliament of United Kingdom (GB)
- Cornwall Partnership NHS Foundation Trust (GB)
- Leicestershire Partnership NHS Trust (GB)
- State Board of Education (US)
- The Challenging Behaviour Foundation (GB)
- University College London (GB)
- University of Plymouth (GB)
Publication Details
- Journal
- The British Journal of Psychiatry
- Published
- 2026-11-03
- DOI
- https://doi.org/10.1192/bjp.2026.10832
- Primary Topic
- Down syndrome and intellectual disability research
- Type
- article
- Field-Weighted Citation Impact
- 0.00