Mechanisms and Outcomes of User-Led Online Peer-to-Peer Support for Individuals With Schizophrenia: A Netnographic Study in Japan

Social networking services are increasingly used by individuals with mental illnesses to share experiences and provide mutual support. However, information about how people with schizophrenia engage in these online spaces and how their participation contributes to recovery is scarce. This study aimed to elucidate the mechanisms and outcomes of user-led online peer-to-peer support for individuals with schizophrenia within a LINE-based online community in Japan. A qualitative netnographic approach, guided by the LiLEDDA method, was employed. This study involved a secondary analysis of a previously collected blog corpus. Of 916 posts published between January 2018 and February 2025, 143 entries were selected for analysis. Data were analysed inductively using thematic analysis. Three interrelated themes were identified: (1) Affordances for Participation, (2) Mechanisms of Support and (3) Perceived Recovery-Related Outcomes. Participation was facilitated by self-regulated engagement, loose ties and light governance: balancing freedom and safety. These affordances enabled mechanisms of hope and self-redefinition through role modelling, empathy-informed practical advice, and the provision of an empathic safe space. Participants described these mechanisms as contributing to perceived recovery-related outcomes, including reduced anxiety and distress, social withdrawal and increased motivation. Online safety and trust also supported the development of offline connections, creating a hybrid, self-reinforcing recovery cycle. These findings suggest a hybrid recovery model linking digital and physical connectedness. Trust and empathy cultivated online translated into offline belonging, while offline experiences reinforced online engagement. Participants described low-intensity, multimodal communication as helping to reduce social withdrawal and support graded reintegration into social life. The mechanisms were further shaped by Japan's collectivist, high-context culture, where harmony and 'loose ties' sustained participation. Thus, user-led online peer communities may represent culturally attuned, recovery-oriented environments that complement traditional mental healthcare.

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Publication Details

Journal
International Journal of Social Psychiatry
Published
2026-11-02
DOI
https://doi.org/10.1177/00207640261496239
Primary Topic
Mental Health and Patient Involvement
Type
article
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article

Mechanisms and Outcomes of User-Led Online Peer-to-Peer Support for Individuals With Schizophrenia: A Netnographic Study in Japan

Ryoko Tomizawa, Sachie Minakawa
2 links
International Journal of Social Psychiatry
Mental Health and Patient Involvement
article

Mechanisms and Outcomes of User-Led Online Peer-to-Peer Support for Individuals With Schizophrenia: A Netnographic Study in Japan

Ryoko Tomizawa, Sachie Minakawa
article en

Abstract

Social networking services are increasingly used by individuals with mental illnesses to share experiences and provide mutual support. However, information about how people with schizophrenia engage in these online spaces and how their participation contributes to recovery is scarce. This study aimed to elucidate the mechanisms and outcomes of user-led online peer-to-peer support for individuals with schizophrenia within a LINE-based online community in Japan. A qualitative netnographic approach, guided by the LiLEDDA method, was employed. This study involved a secondary analysis of a previously collected blog corpus. Of 916 posts published between January 2018 and February 2025, 143 entries were selected for analysis. Data were analysed inductively using thematic analysis. Three interrelated themes were identified: (1) Affordances for Participation, (2) Mechanisms of Support and (3) Perceived Recovery-Related Outcomes. Participation was facilitated by self-regulated engagement, loose ties and light governance: balancing freedom and safety. These affordances enabled mechanisms of hope and self-redefinition through role modelling, empathy-informed practical advice, and the provision of an empathic safe space. Participants described these mechanisms as contributing to perceived recovery-related outcomes, including reduced anxiety and distress, social withdrawal and increased motivation. Online safety and trust also supported the development of offline connections, creating a hybrid, self-reinforcing recovery cycle. These findings suggest a hybrid recovery model linking digital and physical connectedness. Trust and empathy cultivated online translated into offline belonging, while offline experiences reinforced online engagement. Participants described low-intensity, multimodal communication as helping to reduce social withdrawal and support graded reintegration into social life. The mechanisms were further shaped by Japan's collectivist, high-context culture, where harmony and 'loose ties' sustained participation. Thus, user-led online peer communities may represent culturally attuned, recovery-oriented environments that complement traditional mental healthcare.

International Journal of Social Psychiatry
Akita University (JP)
Good health and well-being
Openalex Percentile: Top 11%
Mental Health and Patient Involvement
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