“In a good frame of mind”: exploring the perspectives of young people with Down syndrome participating in a community gym-based program

We aimed to understand the experiences of young people with Down syndrome who participated in a 12-week student-mentored community-gym-based physical activity program called FitSkills. A qualitative study guided by interpretive description methodology was completed as part of a large implementation trial. Semi-structured interviews were conducted with 19 young people with Down syndrome (mean age 21.3 yrs, SD 4.9) or their parent proxy and 20 student mentors who participated in FitSkills. Interviews were audio-recorded and transcribed verbatim. Data were analysed thematically, with rigour and trustworthiness enhanced through reflexivity, multi-researcher analysis and data triangulation. Exercising with a student mentor was described by young people with Down syndrome as an enjoyable activity that resulted in perceived physical and psychosocial benefits. Analysis generated the overall theme FitSkills fostered connection, wellbeing and growth. There were three subthemes: Social connections developed through mentor and participant partnerships; An individually tailored exercise program was credible, effective and engaging; and Being part of the community alongside peers. Physical activity programs delivered in mainstream gym settings and incorporating social connection, can foster psychosocial wellbeing and enable community participation among young people with Down syndrome. Pairing young people with Down syndrome with student mentor exercise partners results in valuable social connectionsIndividualised exercise programs developed by exercise professionals are a foundation for improving health and wellbeing outcomes and physical activity participation for young people with Down syndromeDelivering physical activity programs in mainstream gym settings enables community participation for young people with Down syndrome Pairing young people with Down syndrome with student mentor exercise partners results in valuable social connections Individualised exercise programs developed by exercise professionals are a foundation for improving health and wellbeing outcomes and physical activity participation for young people with Down syndrome Delivering physical activity programs in mainstream gym settings enables community participation for young people with Down syndrome