Diagnosis of the epilepsies in people with learning disabilities: exploring the barriers to equitable care

People with learning disabilities have a greater diagnostic prevalence of the epilepsies than those without learning disabilities. However, diagnosis can be complicated due to various factors, including communication differences and behaviours that may mimic seizures, and a lack of practitioners with knowledge of epilepsy specifically in this population. Such factors can lead to a misdiagnosis, which has significant implications for the individual’s health and quality of life, and may contribute to the health inequities already experienced by people with learning disabilities. This article discusses the challenges associated with diagnosing the epilepsies in people with learning disabilities and the potential impact of misdiagnosis. The authors consider ways in which the diagnostic process may be improved, such as further education in learning disability and epilepsy for practitioners, the use of remote technology in diagnostic interventions, and coordinated multidisciplinary care. Learning disability nurses can advocate for such improvements to enhance diagnostic accuracy, address health inequalities and provide safer, person-centred care.

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Institutions

Publication Details

Journal
Learning Disability Practice
Published
2026-10-29
DOI
https://doi.org/10.7748/ldp.2026.e2312
Primary Topic
Epilepsy research and treatment
Type
article
Field-Weighted Citation Impact
0.00
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article

Diagnosis of the epilepsies in people with learning disabilities: exploring the barriers to equitable care

Áine Magee, Andrew Boyle
2 links
Learning Disability Practice
Epilepsy research and treatment
article

Diagnosis of the epilepsies in people with learning disabilities: exploring the barriers to equitable care

Áine Magee, Andrew Boyle
article en

Abstract

People with learning disabilities have a greater diagnostic prevalence of the epilepsies than those without learning disabilities. However, diagnosis can be complicated due to various factors, including communication differences and behaviours that may mimic seizures, and a lack of practitioners with knowledge of epilepsy specifically in this population. Such factors can lead to a misdiagnosis, which has significant implications for the individual’s health and quality of life, and may contribute to the health inequities already experienced by people with learning disabilities. This article discusses the challenges associated with diagnosing the epilepsies in people with learning disabilities and the potential impact of misdiagnosis. The authors consider ways in which the diagnostic process may be improved, such as further education in learning disability and epilepsy for practitioners, the use of remote technology in diagnostic interventions, and coordinated multidisciplinary care. Learning disability nurses can advocate for such improvements to enhance diagnostic accuracy, address health inequalities and provide safer, person-centred care.

Learning Disability Practice
Edinburgh Napier University (GB), Daisy Hill Hospital (GB)
Good health and well-being, Reduced inequalities
Openalex Percentile: Top 12%
Epilepsy research and treatment
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