Mapping care interventions for people living with motor neurone disease: a living evidence and gap map

Motor neurone disease (MND) is a debilitating, life-limiting neurodegenerative disease that has no cure. Caring for a person living with MND requires a multidisciplinary team delivering interventions to address symptoms. We aimed to map evidence supporting care of those living with MND. Evidence and gap maps (EGMs) were developed according to Campbell and JBI guidance for scoping reviews. Databases searched included CENTRAL, MEDLINE, EMBASE, and PsycINFO with no date restriction. Articles describing care interventions for people living with MND, carers, asymptomatic genetic carriers, family, friends, and healthcare professionals were included. 2390 reports were drawn from 1594 articles that were included across five EGMs, supportive and symptom management (n = 673 articles), pharmacological (n = 592), models of care (n = 196), medical and clinical interventions (n = 185), and technology and equipment (n = 91). Interventions primarily addressed people who are living with MND (n = 1732). No articles were identified specifically concerning First Nations Peoples, Culturally and Linguistically Diverse Peoples, or those living in remote, rural or regional areas. MND care interventions are diverse. Further research is needed to understand options for Culturally and Linguistically Diverse Peoples, First Nations Peoples, and those living in rural, regional, and remote communities.

Authors

Institutions

Publication Details

Journal
Neurodegenerative Disease Management
Published
2026-10-18
DOI
https://doi.org/10.1080/17582024.2026.2749397
Primary Topic
Amyotrophic Lateral Sclerosis Research
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

Mapping care interventions for people living with motor neurone disease: a living evidence and gap map

Lemma N Bulto, Tracy Merlin, Ines Semendric, Nipun Shrestha et al.
Neurodegenerative Disease Management
Amyotrophic Lateral Sclerosis Research
article

Mapping care interventions for people living with motor neurone disease: a living evidence and gap map

Lemma N Bulto, Tracy Merlin, Ines Semendric, Nipun Shrestha, Grace Holland, Camille Schubert, Anna Fragkoudi, Sabira Hasanoff, Danielle Pollock, Sitasma Sharma, Timothy Hugh Barker, Zachary Munn, Lynne C. Giles, Cindy Stern, Melissa Bond, Julie Labra, Lara Stollery, Jay Beasley‐Hall, Sebastian Cole Facchin‐Young, Abigail Molly Day‐Sharman, Steve Vucic, Taryn Hunt, Yogeeta Viswanath Harish
article en

Abstract

Motor neurone disease (MND) is a debilitating, life-limiting neurodegenerative disease that has no cure. Caring for a person living with MND requires a multidisciplinary team delivering interventions to address symptoms. We aimed to map evidence supporting care of those living with MND. Evidence and gap maps (EGMs) were developed according to Campbell and JBI guidance for scoping reviews. Databases searched included CENTRAL, MEDLINE, EMBASE, and PsycINFO with no date restriction. Articles describing care interventions for people living with MND, carers, asymptomatic genetic carriers, family, friends, and healthcare professionals were included. 2390 reports were drawn from 1594 articles that were included across five EGMs, supportive and symptom management (n = 673 articles), pharmacological (n = 592), models of care (n = 196), medical and clinical interventions (n = 185), and technology and equipment (n = 91). Interventions primarily addressed people who are living with MND (n = 1732). No articles were identified specifically concerning First Nations Peoples, Culturally and Linguistically Diverse Peoples, or those living in remote, rural or regional areas. MND care interventions are diverse. Further research is needed to understand options for Culturally and Linguistically Diverse Peoples, First Nations Peoples, and those living in rural, regional, and remote communities.

Neurodegenerative Disease Management
The University of Sydney (AU), ACT Government (AU), Adelaide University (AU), University College London (GB), The University of Adelaide (AU)
Openalex Percentile: Top 14%
Amyotrophic Lateral Sclerosis Research
DOIOpen Access PDFOpenAlex
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.