Making corporate data accessible for public-interest research: A consent-based access mechanism
While privacy regulations such as the GDPR, HIPAA, and CCPA are vital for safeguarding individual rights, the interaction of legal uncertainty, corporate risk management, and restrictive data-sharing practices can, in practice, constrain public-interest research more severely than some commercial uses of data. Academic researchers, operating under strict ethical oversight, non-commercial mandates, and long-standing traditions of responsible data stewardship, can nevertheless face substantial barriers to granular data needed for addressing urgent societal challenges. Unlike tech companies, researchers lack the infrastructure to collect large-scale data passively through consumer-facing platforms; there is no app or service from which research data naturally flows as a byproduct of user interaction. Meanwhile, private technology firms often retain greater practical capacity to collect, analyze, and monetize sensitive user data within their own data infrastructures. This paper argues for a targeted regulatory reform: the introduction of an Institutional Research Use Only consent mechanism that would allow appropriately safeguarded data sharing between tech companies and accredited academic institutions under strict governance. Such a mechanism would resolve the asymmetry between ethical intent and regulatory burden, empowering public-good science without compromising user privacy.
Authors
- Milad S. Malekzadeh (ORCID: https://orcid.org/0000-0003-2275-0497)
Publication Details
- Journal
- Big Data & Society
- Published
- 2026-10-14
- DOI
- https://doi.org/10.1177/20539517261490278
- Primary Topic
- Digitalization, Law, and Regulation
- Type
- article
- Field-Weighted Citation Impact
- 0.00