Best practices for engaging lived experience experts in dialogues about climate change and mental health: lessons learned from a global effort

BACKGROUND: The Connecting Climate Minds global initiative sought to advance research and action at the intersection of climate change and mental health by centering the voices of people with lived experience. METHODS: Through a series of regional and thematic dialogues, Connecting Climate Minds engaged nearly 1,200 participants across seven global regions, including Indigenous communities, smallholder farmers and fisher peoples, and youth. A Lived Experience Working Group guided the integration of lived experience throughout all project components, from co-designing research agendas to producing multimedia storytelling outputs. This perspective reflects on the methodologies, challenges, and lessons learned from Connecting Climate Minds' lived experience engagement, drawing on two global debriefing workshops and extensive project documentation. RESULTS: Key principles that emerged include the importance of appropriately resourcing relationship building ("moving at the speed of trust"), reciprocity, cultural sensitivity, ethical storytelling, and the need for researcher training. The perspective also highlights systemic barriers to meaningful engagement, such as rigid funding structures and institutional resistance to, or inappropriate systems for, power-sharing with impacted communities. By documenting both successes and missteps, this perspective offers practical guidance for researchers, funders, and policymakers committed to inclusive, justice-oriented approaches in climate and mental health research. Ultimately, Connecting Climate Minds demonstrates that centering lived experience not only enriches research quality and relevance but also fosters more equitable and transformative outcomes.

Authors

Institutions

Publication Details

Journal
BMC Global and Public Health
Published
2026-10-13
DOI
https://doi.org/10.1186/s44263-026-00321-7
Primary Topic
Mental Health and Patient Involvement
Type
article
Field-Weighted Citation Impact
0.00

Funders

Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

Best practices for engaging lived experience experts in dialogues about climate change and mental health: lessons learned from a global effort

Lian Zeitz, Ans Vercammen, Sacha Wright, Britt Wray et al.
BMC Global and Public Health
Mental Health and Patient Involvement
article

Best practices for engaging lived experience experts in dialogues about climate change and mental health: lessons learned from a global effort

Lian Zeitz, Ans Vercammen, Sacha Wright, Britt Wray, Jemaima Tiatia-Siau, Gail Co, Kyle Hill, Jeannie Yamazaki, Vashti-Eve Burrows, Suhailah Jasmin Ali, John Jamir Benzon Aruta, Emma L. Lawrance, Renzo R. Guinto, Kezang Wangmo
article en

Abstract

BACKGROUND: The Connecting Climate Minds global initiative sought to advance research and action at the intersection of climate change and mental health by centering the voices of people with lived experience. METHODS: Through a series of regional and thematic dialogues, Connecting Climate Minds engaged nearly 1,200 participants across seven global regions, including Indigenous communities, smallholder farmers and fisher peoples, and youth. A Lived Experience Working Group guided the integration of lived experience throughout all project components, from co-designing research agendas to producing multimedia storytelling outputs. This perspective reflects on the methodologies, challenges, and lessons learned from Connecting Climate Minds' lived experience engagement, drawing on two global debriefing workshops and extensive project documentation. RESULTS: Key principles that emerged include the importance of appropriately resourcing relationship building ("moving at the speed of trust"), reciprocity, cultural sensitivity, ethical storytelling, and the need for researcher training. The perspective also highlights systemic barriers to meaningful engagement, such as rigid funding structures and institutional resistance to, or inappropriate systems for, power-sharing with impacted communities. By documenting both successes and missteps, this perspective offers practical guidance for researchers, funders, and policymakers committed to inclusive, justice-oriented approaches in climate and mental health research. Ultimately, Connecting Climate Minds demonstrates that centering lived experience not only enriches research quality and relevance but also fosters more equitable and transformative outcomes.

BMC Global and Public HealthVol. 4(1)
University of Minnesota (US), State University of New York (US), University of Auckland (NZ), SingHealth (SG), National University of Singapore (SG), Curtin University (AU), Jubilee Hospital (GB), University at Albany, State University of New York (US), University of Oxford (GB), London School of Hygiene & Tropical Medicine (GB), SingHealth Duke-NUS Academic Medical Centre (SG), University of the West Indies (BS), Duke-NUS Medical School (SG), Health and Global Policy Institute (JP), Stanford Medicine (US), St. Luke's Medical Center College of Medicine-William H. Quasha Memorial (PH), De La Salle University (PH), Stanford University (US)
Wellcome Trust
Openalex Percentile: Top 9%
Mental Health and Patient Involvement
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.