Non-neurogenic bladder failure as an invisible disability
Drawing on over two years of lived experience managing non-neurogenic bladder failure (NNBF), this article argues that the condition’s principal disadvantage arises from structural invisibility as much as from the physiological condition itself. NNBF is a chronic condition requiring clean intermittent self-catheterisation every three hours. Unlike neurogenic bladder dysfunction, NNBF lacks an established diagnostic anchor, occupying an uncertain clinical space. Four key consequences are identified: temporal organisation (rigid schedules override social convention); disclosure (invisible conditions impose continuous, unsupported labour); clinical care (absence of standardised pathways due to rarity); and embodied identity (reconciliation between procedure and self conducted privately, without recognition). The article contends that invisibility compounds rather than alleviates disability. It calls for explicit recognition of NNBF within clinical and disability frameworks, standardisation of catheter supplies, clear facility marking for catheterisation, and workplace accommodation of fixed scheduling needs. The argument extends beyond NNBF to assert that under-recognised conditions should not disadvantage people through invisibility.
Authors
- Paul M. W. Hackett (ORCID: https://orcid.org/0000-0002-9365-8084)
Institutions
- University of Suffolk (GB)
- Suffolk University (US)
Publication Details
- Journal
- Disability & Society
- Published
- 2026-10-05
- DOI
- https://doi.org/10.1080/09687599.2026.2738378
- Primary Topic
- Disability Rights and Representation
- Type
- article
- Field-Weighted Citation Impact
- 0.00