Regional neurodevelopmental and psychosocial encounters for children with CHD: an updated validation cohort from Northern New England

We have previously described how children with complex CHD access developmental and psychosocial services in Maine, most often beyond the reach of the surgical centre. In this follow-up study, we describe a similar pattern for children in Vermont. Of 406 at-risk children between 2017 and 2019, 37% had an encounter. Very few individuals underwent developmental assessment or psychological or neuropsychological testing (1-4%). Visit volume was highest for mental health assessments in children older than 5 years and occurred predominately in community clinics and private practices close to home.