How Families Become Able to Assume Surrogate Decision‐Making Responsibility in Donation After Brain Death: An Interpretive Qualitative Study

Donation after brain death requires families to assume surrogate decision-making responsibility while coping with sudden loss and uncertainty. The aim of this study was to explore how family members became able to assume this responsibility. Semi-structured interviews were conducted 3-7 years after donation with four family members who had participated in organ donation discussions in Japan. Data were analysed using Krippendorff's qualitative content analysis. Families described being assigned responsibility before feeling ready, regaining orientation through sustained interaction with healthcare professionals, developing moral authorisation to decide despite uncertainty and integrating the decision into their lives over time. These findings suggest that surrogate decisional agency develops through relational and temporal processes rather than through information provision alone. Relational continuity, sensitive timing and post-decision support may help critical care nurses support families facing surrogate decision-making.

Authors

Institutions

Publication Details

Journal
Nursing in Critical Care
Published
2026-09-30
DOI
https://doi.org/10.1111/nicc.70729
Primary Topic
Palliative Care and End-of-Life Issues
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
article

How Families Become Able to Assume Surrogate Decision‐Making Responsibility in Donation After Brain Death: An Interpretive Qualitative Study

Yasutaka Morita, Keiko Mori
Nursing in Critical Care
Palliative Care and End-of-Life Issues
article

How Families Become Able to Assume Surrogate Decision‐Making Responsibility in Donation After Brain Death: An Interpretive Qualitative Study

Yasutaka Morita, Keiko Mori
article en

Abstract

Donation after brain death requires families to assume surrogate decision-making responsibility while coping with sudden loss and uncertainty. The aim of this study was to explore how family members became able to assume this responsibility. Semi-structured interviews were conducted 3-7 years after donation with four family members who had participated in organ donation discussions in Japan. Data were analysed using Krippendorff's qualitative content analysis. Families described being assigned responsibility before feeling ready, regaining orientation through sustained interaction with healthcare professionals, developing moral authorisation to decide despite uncertainty and integrating the decision into their lives over time. These findings suggest that surrogate decisional agency develops through relational and temporal processes rather than through information provision alone. Relational continuity, sensitive timing and post-decision support may help critical care nurses support families facing surrogate decision-making.

Nursing in Critical CareVol. 31(6)
Okayama University (JP), Juntendo University Shizuoka Hospital (JP)
Peace, Justice and strong institutions
Openalex Percentile: Top 9%
Palliative Care and End-of-Life Issues
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.