Exploring Research Participants' Perceptions and Attitudes Toward Research and Informed Consent in Myanmar

ABSTRACT Informed consent is fundamental to ethical research involving human participants; however, little is known about the public's understanding of research participants' rights in Myanmar. This multicenter cross‐sectional study examined patients' perceptions of medical research, attitudes toward information disclosure during the informed consent process, and recognition of participants' rights using a structured, self‐administered questionnaire completed by 284 adult patients from three hospitals. Most respondents viewed medical research positively but demonstrated varying levels of trust and understanding of ethical protections. Higher educational attainment and household expenditure were associated with more favorable perceptions. Participants strongly supported transparent informed consent procedures and comprehensive information disclosure; however, awareness of complaint mechanisms and understanding of the rights to withdraw from research and confidentiality were limited. These findings identify priorities for strengthening ethics education, investigator communication, and institutional transparency to support meaningful informed consent and sustain public trust as health research continues to expand in Myanmar.

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Publication Details

Journal
Developing World Bioethics
Published
2026-09-29
DOI
https://doi.org/10.1111/dewb.70060
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
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article

Exploring Research Participants' Perceptions and Attitudes Toward Research and Informed Consent in Myanmar

Kyaw Swa Mya, HENRY J. SILVERMAN, Min Myat Thway, Aye Thida Win et al.
Developing World Bioethics
Ethics in Clinical Research
article

Exploring Research Participants' Perceptions and Attitudes Toward Research and Informed Consent in Myanmar

Kyaw Swa Mya, HENRY J. SILVERMAN, Min Myat Thway, Aye Thida Win, Haymun Oo
article en

Abstract

ABSTRACT Informed consent is fundamental to ethical research involving human participants; however, little is known about the public's understanding of research participants' rights in Myanmar. This multicenter cross‐sectional study examined patients' perceptions of medical research, attitudes toward information disclosure during the informed consent process, and recognition of participants' rights using a structured, self‐administered questionnaire completed by 284 adult patients from three hospitals. Most respondents viewed medical research positively but demonstrated varying levels of trust and understanding of ethical protections. Higher educational attainment and household expenditure were associated with more favorable perceptions. Participants strongly supported transparent informed consent procedures and comprehensive information disclosure; however, awareness of complaint mechanisms and understanding of the rights to withdraw from research and confidentiality were limited. These findings identify priorities for strengthening ethics education, investigator communication, and institutional transparency to support meaningful informed consent and sustain public trust as health research continues to expand in Myanmar.

Developing World Bioethics
University of Maryland, Baltimore (US), East Yangon General Hospital (MM), University of Medicine 2 Yangon (MM), University Of Medicine 1 Yangon (MM), University of Medicine, Taunggyi (MM)
Openalex Percentile: Top 9%
Ethics in Clinical Research
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Exploring Research Participants' Perceptions and Attitudes Toward Research and Informed Consent in Myanmar — Kyaw Swa Mya, HENRY J. SILVERMAN, et al. · Developing World Bioethics (2026) | TGRS Research Map | TGRS