Co-Designing an Online Narrative-Based Intervention for Breathing and Psychological Wellbeing for Adolescents With Post-COVID Syndrome

PurposePost-COVID syndrome (PCS) also known as long COVID affects up to 66.5% of children and young people (CYP) following SARS-CoV-2 infection. Common symptoms include fatigue, headaches, anxiety, brain fog, breathlessness, and post-exertional symptom exacerbation, resulting in reduced school attendance and recreational participation. This study aimed to co-design an online group intervention to support psychological wellbeing, breathing retraining, symptom management, and peer connection during PCS recovery.MethodA co-design approach refined a 'journey-of-life' online intervention for adolescents with PCS and incorporated respiratory physiotherapy activities.ResultsSeven CYP provided feedback on the intervention structure, pacing, accessibility, and content. Participants valued the breathing retraining with narrative-based psychological approaches and highlighted the importance of peer connection, regular breaks, and accessible online resources to accommodate fatigue and cognitive symptoms. Feedback informed refinement of the intervention structure, physiotherapy activities, and supporting digital materials.ConclusionCo-design with CYP with lived experience of PCS supported the development of a patient-centred online intervention integrating psychological and physiotherapy approaches. The findings highlight the value of involving CYP in the development of interventions for complex long-term conditions and demonstrate the potential of accessible telehealth approaches to support recovery and wellbeing. Further evaluation of feasibility, acceptability, and clinical impact is warranted.