INCORPORATING LIVED EXPERIENCE INTO PSYCHIATRIC GENETICS RESEARCH: NOT JUST WHY BUT HOW

The mission of the International Society of Psychiatric Genetics is to “improve mental health by advancing and translating research in psychiatric genetics”. Involving people with lived experience of mental illness in this endeavour is central to the translational objective, and support for that principle is now widespread. However, effective involvement of non-academic partners, and of researchers or clinicians with relevant lived experience, remains challenging for multiple reasons. In this talk I will briefly identify some of the main challenges, explore the roles that people with lived experience can play in psychiatric genetics research, and showcase some projects which have effectively combined lived, clinical and academic knowledge to positive effect. I will finish by discussing how a principles-led approach can help us overcome obstacles and develop coproduction activity which is adaptable, innovative, progressive and authentic.

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Publication Details

Journal
European Neuropsychopharmacology
Published
2026-09-21
DOI
https://doi.org/10.1016/j.euroneuro.2026.112934
Primary Topic
BRCA gene mutations in cancer
Type
article
Field-Weighted Citation Impact
0.00
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article

INCORPORATING LIVED EXPERIENCE INTO PSYCHIATRIC GENETICS RESEARCH: NOT JUST WHY BUT HOW

Sue Fletcher‐Watson
European Neuropsychopharmacology
BRCA gene mutations in cancer
article

INCORPORATING LIVED EXPERIENCE INTO PSYCHIATRIC GENETICS RESEARCH: NOT JUST WHY BUT HOW

Sue Fletcher‐Watson
article en

Abstract

The mission of the International Society of Psychiatric Genetics is to “improve mental health by advancing and translating research in psychiatric genetics”. Involving people with lived experience of mental illness in this endeavour is central to the translational objective, and support for that principle is now widespread. However, effective involvement of non-academic partners, and of researchers or clinicians with relevant lived experience, remains challenging for multiple reasons. In this talk I will briefly identify some of the main challenges, explore the roles that people with lived experience can play in psychiatric genetics research, and showcase some projects which have effectively combined lived, clinical and academic knowledge to positive effect. I will finish by discussing how a principles-led approach can help us overcome obstacles and develop coproduction activity which is adaptable, innovative, progressive and authentic.

European NeuropsychopharmacologyVol. 111
University of Edinburgh (GB)
Openalex Percentile: Top 11%
BRCA gene mutations in cancer
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