Navigating fragmented and contingent support: A qualitative study of British Armed Forces families raising neurodivergent children

British Armed Forces families raising neurodivergent children must coordinate health, education, welfare and informal support within a service context characterised by mobility and deployment. This study examined how families understood, accessed and sustained support, and how these processes shaped caregiving and family life. Twelve parents and caregivers of children aged 3–17 years with diagnosed or suspected neurodevelopmental conditions participated in online semi-structured interviews. Guided by critical realism, data were analysed using reflexive thematic analysis. The analysis showed that support was experienced less as a stable entitlement than as a contingent achievement. Relocation repeatedly interrupted clinical, diagnostic and educational pathways. Parents consequently became continuity brokers who carried records, rebuilt professional relationships and repeatedly legitimised their children's needs. Military welfare and informal networks could provide meaningful practical and emotional help, but access depended heavily on local knowledge, individual champions and geographic proximity. Advocacy generated occupational, financial and emotional costs that were often gendered. Deployment further redistributed care, disrupted routines and reverberated across caregiver wellbeing, child regulation and serving personnel's work. Parents also described meaning, pride and solidarity, while resisting uses of “resilience” that shifted responsibility from systems to families. These findings identify a policy-implementation gap: commitments to avoid service-related disadvantage do not consistently translate into portable, neurodiversity-informed support. Greater continuity across postings, transparent inter-agency handovers, knowledgeable welfare provision and deployment-sensitive respite are required.

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Publication Details

Journal
PLoS ONE
Published
2026-09-21
DOI
https://doi.org/10.1371/journal.pone.0358595
Primary Topic
Child Welfare and Adoption
Type
article
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article

Navigating fragmented and contingent support: A qualitative study of British Armed Forces families raising neurodivergent children

Niko Kargas, Victoria L. Brelsford, Mirena Dimolareva, Anum Farooq et al.
PLoS ONE
Child Welfare and Adoption
article

Navigating fragmented and contingent support: A qualitative study of British Armed Forces families raising neurodivergent children

Niko Kargas, Victoria L. Brelsford, Mirena Dimolareva, Anum Farooq, Stamatina Tsiora, Ella Doolan-Dransfield, Holly Stocks, Julian Free
article en

Abstract

British Armed Forces families raising neurodivergent children must coordinate health, education, welfare and informal support within a service context characterised by mobility and deployment. This study examined how families understood, accessed and sustained support, and how these processes shaped caregiving and family life. Twelve parents and caregivers of children aged 3–17 years with diagnosed or suspected neurodevelopmental conditions participated in online semi-structured interviews. Guided by critical realism, data were analysed using reflexive thematic analysis. The analysis showed that support was experienced less as a stable entitlement than as a contingent achievement. Relocation repeatedly interrupted clinical, diagnostic and educational pathways. Parents consequently became continuity brokers who carried records, rebuilt professional relationships and repeatedly legitimised their children's needs. Military welfare and informal networks could provide meaningful practical and emotional help, but access depended heavily on local knowledge, individual champions and geographic proximity. Advocacy generated occupational, financial and emotional costs that were often gendered. Deployment further redistributed care, disrupted routines and reverberated across caregiver wellbeing, child regulation and serving personnel's work. Parents also described meaning, pride and solidarity, while resisting uses of “resilience” that shifted responsibility from systems to families. These findings identify a policy-implementation gap: commitments to avoid service-related disadvantage do not consistently translate into portable, neurodiversity-informed support. Greater continuity across postings, transparent inter-agency handovers, knowledgeable welfare provision and deployment-sensitive respite are required.

PLoS ONEVol. 21(9)
United Arab Emirates University (AE), Chancellor University (US), University College London (GB), University of Lincoln (GB)
Gender equality
Openalex Percentile: Top 7%
Child Welfare and Adoption
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