Advance Directives in Mild Dementia: Barriers and Facilitators in the Taiwanese Healthcare Context

Objectives To synthesize the multidimensional barriers and facilitators influencing advance directive (AD) engagement among people with mild dementia in Taiwan and identify practice and policy considerations that may support earlier and more effective advance care planning (ACP). Methods A narrative review was conducted using PubMed, Scopus, Web of Science, and Google Scholar to identify English- and Chinese-language literature published from January 2000 to June 2025. Studies addressing AD or ACP engagement among people with dementia, mild cognitive impairment, older adults, caregivers, or healthcare professionals were considered. Relevant findings were narratively synthesized and organized into individual, familial, social, and national domains. Results Fifty-one sources were included. AD engagement was influenced by interacting factors across all four domains. At the individual level, greater understanding of dementia progression, positive attitudes toward autonomy, and psychological readiness facilitated engagement, whereas fear, denial, and misconceptions about end-of-life care created barriers. Family communication, consensus, and previous experiences with AD could either facilitate or delay decision-making. Social barriers included cultural reluctance to discuss death and unequal access to ACP services. At the national level, multidisciplinary ACP models, structured communication approaches, public education, and Taiwan’s centralized AD registry supported implementation, whereas workforce limitations and delayed initiation remained important challenges. Conclusions Improving AD engagement among people with mild dementia requires timely, dementia-adapted and family-inclusive ACP that preserves individual autonomy. Integrating structured ACP into routine dementia care, strengthening multidisciplinary training, and expanding community-based access may help ensure that future care reflects patients’ values and preferences.

Authors

Institutions

Publication Details

Journal
American Journal of Hospice and Palliative Medicine®
Published
2026-09-21
DOI
https://doi.org/10.1177/10499091261492195
Primary Topic
Palliative Care and End-of-Life Issues
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
article

Advance Directives in Mild Dementia: Barriers and Facilitators in the Taiwanese Healthcare Context

Yi-Ying Hsieh, Ming-Hung Chen, Chia-Chen Lin, Zi-Rong Chen
American Journal of Hospice and Palliative Medicine®
Palliative Care and End-of-Life Issues
article

Advance Directives in Mild Dementia: Barriers and Facilitators in the Taiwanese Healthcare Context

Yi-Ying Hsieh, Ming-Hung Chen, Chia-Chen Lin, Zi-Rong Chen
article en

Abstract

Objectives To synthesize the multidimensional barriers and facilitators influencing advance directive (AD) engagement among people with mild dementia in Taiwan and identify practice and policy considerations that may support earlier and more effective advance care planning (ACP). Methods A narrative review was conducted using PubMed, Scopus, Web of Science, and Google Scholar to identify English- and Chinese-language literature published from January 2000 to June 2025. Studies addressing AD or ACP engagement among people with dementia, mild cognitive impairment, older adults, caregivers, or healthcare professionals were considered. Relevant findings were narratively synthesized and organized into individual, familial, social, and national domains. Results Fifty-one sources were included. AD engagement was influenced by interacting factors across all four domains. At the individual level, greater understanding of dementia progression, positive attitudes toward autonomy, and psychological readiness facilitated engagement, whereas fear, denial, and misconceptions about end-of-life care created barriers. Family communication, consensus, and previous experiences with AD could either facilitate or delay decision-making. Social barriers included cultural reluctance to discuss death and unequal access to ACP services. At the national level, multidisciplinary ACP models, structured communication approaches, public education, and Taiwan’s centralized AD registry supported implementation, whereas workforce limitations and delayed initiation remained important challenges. Conclusions Improving AD engagement among people with mild dementia requires timely, dementia-adapted and family-inclusive ACP that preserves individual autonomy. Integrating structured ACP into routine dementia care, strengthening multidisciplinary training, and expanding community-based access may help ensure that future care reflects patients’ values and preferences.

American Journal of Hospice and Palliative Medicine®
Cheng Ching Hospital (TW)
Peace, Justice and strong institutions
Openalex Percentile: Top 9%
Palliative Care and End-of-Life Issues
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.

Advance Directives in Mild Dementia: Barriers and Facilitators in the Taiwanese Healthcare Context — Yi-Ying Hsieh, Ming-Hung Chen, et al. · American Journal of Hospice and Palliative Medicine® (2026) | TGRS Research Map | TGRS