“Oops, did we include you?” Rethinking PBS through co-production with Steven

Purpose This paper aims to share the story of a co-produced functional behaviour assessment (FBA) with Steven, a young man who helped us rethink what it really means to involve someone in their own support. Using observation, data collection and analysis, the authors made the process accessible and collaborative by working alongside Steven to ensure it was meaningful and person-led. Design/methodology/approach With shared activities, humour and trust, Steven did not just contribute to his plan; he shaped it. Findings In response to concerns about assumption-driven planning and tokenistic involvement in positive behaviour support (Gore et al., 2022), the authors reimagined the FBA with Steven as a co-designer, guided by functional contextualism to ensure meaning was derived from his perspective (McGill, 1996). His insights changed how we thought about behaviour, communication and what good support looks like. Originality/value This is not a how-to guide. It is a reflection on what changes when we centre the person from the beginning, and why co-production is essential.

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Publication Details

Journal
Tizard Learning Disability Review
Published
2026-09-17
DOI
https://doi.org/10.1108/tldr-09-2025-0039
Primary Topic
Mental Health and Patient Involvement
Type
article
Field-Weighted Citation Impact
0.00
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article

“Oops, did we include you?” Rethinking PBS through co-production with Steven

Sara Silva Neagle, Steven Rowbotham
Tizard Learning Disability Review
Mental Health and Patient Involvement
article

“Oops, did we include you?” Rethinking PBS through co-production with Steven

Sara Silva Neagle, Steven Rowbotham
article en

Abstract

Purpose This paper aims to share the story of a co-produced functional behaviour assessment (FBA) with Steven, a young man who helped us rethink what it really means to involve someone in their own support. Using observation, data collection and analysis, the authors made the process accessible and collaborative by working alongside Steven to ensure it was meaningful and person-led. Design/methodology/approach With shared activities, humour and trust, Steven did not just contribute to his plan; he shaped it. Findings In response to concerns about assumption-driven planning and tokenistic involvement in positive behaviour support (Gore et al., 2022), the authors reimagined the FBA with Steven as a co-designer, guided by functional contextualism to ensure meaning was derived from his perspective (McGill, 1996). His insights changed how we thought about behaviour, communication and what good support looks like. Originality/value This is not a how-to guide. It is a reflection on what changes when we centre the person from the beginning, and why co-production is essential.

Tizard Learning Disability Review
Doncaster College (GB), Community Living (US)
Openalex Percentile: Top 6%
Mental Health and Patient Involvement
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