“I mixed the medicine with milk; said it was strawberry flavored”: Parental challenges, coping strategies, and hopes in supporting childhood tuberculosis treatment adherence in Makassar, Indonesia

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Publication Details

Journal
Journal of Health Psychology
Published
2026-09-17
DOI
https://doi.org/10.1177/13591053261475793
Primary Topic
Tuberculosis Research and Epidemiology
Type
article
Field-Weighted Citation Impact
0.00

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article

“I mixed the medicine with milk; said it was strawberry flavored”: Parental challenges, coping strategies, and hopes in supporting childhood tuberculosis treatment adherence in Makassar, Indonesia

Lusiana R. Idrus, Herlina Rante, Dyah Aryani Perwitasari, Firas Farisi Alkaff et al.
Journal of Health Psychology
Tuberculosis Research and Epidemiology
article

“I mixed the medicine with milk; said it was strawberry flavored”: Parental challenges, coping strategies, and hopes in supporting childhood tuberculosis treatment adherence in Makassar, Indonesia

Lusiana R. Idrus, Herlina Rante, Dyah Aryani Perwitasari, Firas Farisi Alkaff, Maarten J. Postma, Ahmad Fuady, Saidah Rauf, Sylmina Dalily Alkaff, Harun Iskandar, Abdul Khairul Rizki Purba, Finny Fitry Yani, Bustanul Arifin, Jamaluddin Madolangan, Syed Azhar Syed Sulaiman, Makiyatul Munawwaroh, Akhmad Ardiansyah, Mas Wishnuwardhana, Latifah mahaya sarifah, Irnawati Hi Amin, Muh Nasrum Massi, Muhammad Syahrir, Syafriani
article en

Abstract

This study explored how parents in Makassar, Indonesia, support childhood tuberculosis (TB) treatment adherence amid emotional, social, and sensory challenges. Seventeen caregivers participated in the in-depth interviews. We conducted a conceptual framework-informed deductive thematic analysis, organizing the findings within seven a priori analytic domains: internal challenges, external challenges, internal coping strategies, external coping strategies, religious coping strategies, expectations of health services, and parental expectations for children and the community. Parents described difficulties with medication schedules, fatigue, stigma, and inconsistent guidance from healthcare workers. To cope, they employed practical and relational strategies: alarms, reframing medicines as "superheroes," offering treats, and prayer. Practices such as mixing medicines with milk revealed counseling gaps and risks for suboptimal adherence. Parents called for clearer communication and family-centered support, alongside hopes for recovery and freedom from stigma. These findings show that childhood TB caregiving is embodied and emotional, requiring culturally responsive and family-centered approaches.

Journal of Health Psychology
Universitas Kristen Indonesia (ID), University Medical Center Groningen (NL), Universiti Sains Malaysia (MY), Universitas Trisakti (ID), University of Groningen (NL), President University (ID), Airlangga University (ID), Universitas Ahmad Dahlan (ID), Duke Regional Hospital (US), Government of West Bengal (IN), University of Indonesia (ID), Manado State University (ID), Muhammadiyah University of Surakarta (ID), Universitas Esa Unggul (ID), Universitas Sembilanbelas November Kolaka (ID), Universitas Surakarta (ID), Universitas Kristen Indonesia Maluku (ID), Universitas Sahid Surakarta (ID), Universitas Tompotika Luwuk (ID), Politeknik Kesehatan Kemenkes Semarang (ID), Andalas University (ID), Padjadjaran University (ID), Hasanuddin University (ID)
Universitas Hasanuddin
Openalex Percentile: Top 11%
Tuberculosis Research and Epidemiology
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