Caring without fear

Being born with a 50% risk of developing Alzheimer’s before the age of 45 can generate fear, and even more so when they participate in research where they may experience more anxiety with the idea of the disease in a close proximity. However, in Colombian families with a genetic risk of inheriting the E280A mutation in the Presenilin 1 gene, there is evident courage in facing this reality every day. This article seeks to pay tribute to these families, but especially to the caregivers. The testimony of a young caregiver whose life revolves around his mother’s well-being helps physicians and scientists understand the Alzheimer’s disease in ways that are not found in books or articles: the everyday experience of “being” and the struggle “continuing to be”.