Affiliate stigma among family caregivers of people living with HIV/AIDS: a concept analysis

Family caregivers of people living with HIV/AIDS often experience affiliate stigma due to their close association with affected individuals, which adversely affects their well-being and care quality. However, a standardized conceptual definition of this phenomenon remains lacking. This study aimed to clarify the concept of affiliate stigma among family caregivers using Rodgers' evolutionary concept analysis. A systematic literature search across nine electronic databases yielded 40 studies from 11 countries across Africa, Asia, Europe, and North America. Five core attributes were identified: associative passivity, social labeling, associative social exclusion, emotional internalization, and behavioral concealment. Antecedents included demographic factors, disease-related awareness, sociocultural factors, and social support. Consequences included significantly heightened negative emotions, deteriorating physical health, altered family dynamics, and reduced quality of life. This analysis provides a structured conceptual understanding of affiliate stigma and offers a theoretical foundation for developing culturally sensitive assessment tools and targeted interventions to support family caregivers and improve care outcomes.

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Publication Details

Journal
AIDS Care
Published
2026-09-15
DOI
https://doi.org/10.1080/09540121.2026.2727775
Primary Topic
Family Caregiving in Mental Illness
Type
article
Field-Weighted Citation Impact
0.00
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article

Affiliate stigma among family caregivers of people living with HIV/AIDS: a concept analysis

Chuying Chen, Yanfen Fu, Shixiao Zhang, Zhongfang Yang et al.
AIDS Care
Family Caregiving in Mental Illness
article

Affiliate stigma among family caregivers of people living with HIV/AIDS: a concept analysis

Chuying Chen, Yanfen Fu, Shixiao Zhang, Zhongfang Yang, Xingying Zhao, Hongli Yang, Jiahong Ling
article en

Abstract

Family caregivers of people living with HIV/AIDS often experience affiliate stigma due to their close association with affected individuals, which adversely affects their well-being and care quality. However, a standardized conceptual definition of this phenomenon remains lacking. This study aimed to clarify the concept of affiliate stigma among family caregivers using Rodgers' evolutionary concept analysis. A systematic literature search across nine electronic databases yielded 40 studies from 11 countries across Africa, Asia, Europe, and North America. Five core attributes were identified: associative passivity, social labeling, associative social exclusion, emotional internalization, and behavioral concealment. Antecedents included demographic factors, disease-related awareness, sociocultural factors, and social support. Consequences included significantly heightened negative emotions, deteriorating physical health, altered family dynamics, and reduced quality of life. This analysis provides a structured conceptual understanding of affiliate stigma and offers a theoretical foundation for developing culturally sensitive assessment tools and targeted interventions to support family caregivers and improve care outcomes.

AIDS Care
Soochow University (CN), Yunnan Provincial Infectious Disease Hospital (CN), Dali University (CN)
Reduced inequalities
Openalex Percentile: Top 7%
Family Caregiving in Mental Illness
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Affiliate stigma among family caregivers of people living with HIV/AIDS: a concept analysis — Chuying Chen, Yanfen Fu, et al. · AIDS Care (2026) | TGRS Research Map | TGRS