Affiliate stigma among family caregivers of people living with HIV/AIDS: a concept analysis
Family caregivers of people living with HIV/AIDS often experience affiliate stigma due to their close association with affected individuals, which adversely affects their well-being and care quality. However, a standardized conceptual definition of this phenomenon remains lacking. This study aimed to clarify the concept of affiliate stigma among family caregivers using Rodgers' evolutionary concept analysis. A systematic literature search across nine electronic databases yielded 40 studies from 11 countries across Africa, Asia, Europe, and North America. Five core attributes were identified: associative passivity, social labeling, associative social exclusion, emotional internalization, and behavioral concealment. Antecedents included demographic factors, disease-related awareness, sociocultural factors, and social support. Consequences included significantly heightened negative emotions, deteriorating physical health, altered family dynamics, and reduced quality of life. This analysis provides a structured conceptual understanding of affiliate stigma and offers a theoretical foundation for developing culturally sensitive assessment tools and targeted interventions to support family caregivers and improve care outcomes.
Authors
- Chuying Chen (ORCID: https://orcid.org/0000-0003-2085-1577)
- Yanfen Fu (ORCID: https://orcid.org/0000-0002-1094-7551)
- Shixiao Zhang (ORCID: https://orcid.org/0000-0003-4417-8938)
- Zhongfang Yang
- Xingying Zhao
- Hongli Yang (ORCID: https://orcid.org/0009-0006-7699-7160)
- Jiahong Ling (ORCID: https://orcid.org/0009-0003-4849-2139)
Institutions
- Soochow University (CN)
- Yunnan Provincial Infectious Disease Hospital (CN)
- Dali University (CN)
Publication Details
- Journal
- AIDS Care
- Published
- 2026-09-15
- DOI
- https://doi.org/10.1080/09540121.2026.2727775
- Primary Topic
- Family Caregiving in Mental Illness
- Type
- article
- Field-Weighted Citation Impact
- 0.00