Embracing the DIGNITY of Resident Relationships: A Case Study of the Decision-Making in Aging and Dementia for Autonomy (DIGNITY) Protocol

Public policies governing U.S. nursing homes emphasize resident rights, autonomy, and person-centered care, yet translating these principles into everyday practice remains challenging - particularly for residents living with dementia whose preferences involve perceived risk. Regulatory requirements, liability concerns, and inconsistent interpretations of decision-making capacity often constrain staff ability to honor resident choice. This case study examines the application of the Decision-making in Aging and Dementia for Autonomy (DIGNITY) protocol, a structured, evidence-based framework designed to support shared decision-making within regulated long-term care environments. Using a resident-to-resident relationship preference as an illustrative case, the study demonstrates how the DIGNITY protocol guides interdisciplinary decision-making through systematic preference assessment, decision-specific capacity evaluation, risk-benefit analysis, documentation, family engagement, and collaboration with organizational leadership and regulators. The case highlights policy-relevant challenges, including the inappropriate reliance on cognitive screening tools such as the Brief Interview for Mental Status (BIMS) as proxies for decision-making capacity. Findings underscore the importance of clear organizational policies, staff training, and leadership engagement to align person-centered care with regulatory expectations. This case study illustrates how structured decision-making protocols can operationalize resident rights, support autonomy, and mitigate risk, offering a practical model for policy implementation in nursing home dementia care.

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Publication Details

Journal
Journal of Aging & Social Policy
Published
2026-09-12
DOI
https://doi.org/10.1080/08959420.2026.2729026
Primary Topic
Geriatric Care and Nursing Homes
Type
article
Field-Weighted Citation Impact
0.00

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article

Embracing the DIGNITY of Resident Relationships: A Case Study of the Decision-Making in Aging and Dementia for Autonomy (DIGNITY) Protocol

Mary Lou Ciolfi, Joanne Roman Jones, Liza Behrens, Betsy Kemeny et al.
Journal of Aging & Social Policy
Geriatric Care and Nursing Homes
article

Embracing the DIGNITY of Resident Relationships: A Case Study of the Decision-Making in Aging and Dementia for Autonomy (DIGNITY) Protocol

Mary Lou Ciolfi, Joanne Roman Jones, Liza Behrens, Betsy Kemeny, A. A. Myers, Nicole Osevala, Susan Ryan, Caroline Madrigal, Karolus Wangi, Nicole Sarver
article en

Abstract

Public policies governing U.S. nursing homes emphasize resident rights, autonomy, and person-centered care, yet translating these principles into everyday practice remains challenging - particularly for residents living with dementia whose preferences involve perceived risk. Regulatory requirements, liability concerns, and inconsistent interpretations of decision-making capacity often constrain staff ability to honor resident choice. This case study examines the application of the Decision-making in Aging and Dementia for Autonomy (DIGNITY) protocol, a structured, evidence-based framework designed to support shared decision-making within regulated long-term care environments. Using a resident-to-resident relationship preference as an illustrative case, the study demonstrates how the DIGNITY protocol guides interdisciplinary decision-making through systematic preference assessment, decision-specific capacity evaluation, risk-benefit analysis, documentation, family engagement, and collaboration with organizational leadership and regulators. The case highlights policy-relevant challenges, including the inappropriate reliance on cognitive screening tools such as the Brief Interview for Mental Status (BIMS) as proxies for decision-making capacity. Findings underscore the importance of clear organizational policies, staff training, and leadership engagement to align person-centered care with regulatory expectations. This case study illustrates how structured decision-making protocols can operationalize resident rights, support autonomy, and mitigate risk, offering a practical model for policy implementation in nursing home dementia care.

Journal of Aging & Social Policy
Pennsylvania State University (US), Slippery Rock University (US), VA Boston Healthcare System (US), Valley View University (GH), University of Massachusetts Boston (US), Institute on Aging (US), Institute of Aging (CA), University of Maine (US)
University of Pennsylvania, Pennsylvania State University, National Center for Advancing Translational Sciences
Peace, Justice and strong institutions
Openalex Percentile: Top 6%
Geriatric Care and Nursing Homes
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