Embracing the DIGNITY of Resident Relationships: A Case Study of the Decision-Making in Aging and Dementia for Autonomy (DIGNITY) Protocol
Public policies governing U.S. nursing homes emphasize resident rights, autonomy, and person-centered care, yet translating these principles into everyday practice remains challenging - particularly for residents living with dementia whose preferences involve perceived risk. Regulatory requirements, liability concerns, and inconsistent interpretations of decision-making capacity often constrain staff ability to honor resident choice. This case study examines the application of the Decision-making in Aging and Dementia for Autonomy (DIGNITY) protocol, a structured, evidence-based framework designed to support shared decision-making within regulated long-term care environments. Using a resident-to-resident relationship preference as an illustrative case, the study demonstrates how the DIGNITY protocol guides interdisciplinary decision-making through systematic preference assessment, decision-specific capacity evaluation, risk-benefit analysis, documentation, family engagement, and collaboration with organizational leadership and regulators. The case highlights policy-relevant challenges, including the inappropriate reliance on cognitive screening tools such as the Brief Interview for Mental Status (BIMS) as proxies for decision-making capacity. Findings underscore the importance of clear organizational policies, staff training, and leadership engagement to align person-centered care with regulatory expectations. This case study illustrates how structured decision-making protocols can operationalize resident rights, support autonomy, and mitigate risk, offering a practical model for policy implementation in nursing home dementia care.
Authors
- Mary Lou Ciolfi
- Joanne Roman Jones (ORCID: https://orcid.org/0000-0002-9639-9284)
- Liza Behrens (ORCID: https://orcid.org/0000-0002-6143-2654)
- Betsy Kemeny (ORCID: https://orcid.org/0000-0001-5313-6698)
- A. A. Myers
- Nicole Osevala
- Susan Ryan
- Caroline Madrigal
- Karolus Wangi
- Nicole Sarver
Institutions
- Pennsylvania State University (US)
- Slippery Rock University (US)
- VA Boston Healthcare System (US)
- Valley View University (GH)
- University of Massachusetts Boston (US)
- Institute on Aging (US)
- Institute of Aging (CA)
- University of Maine (US)
Publication Details
- Journal
- Journal of Aging & Social Policy
- Published
- 2026-09-12
- DOI
- https://doi.org/10.1080/08959420.2026.2729026
- Primary Topic
- Geriatric Care and Nursing Homes
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- University of Pennsylvania
- Pennsylvania State University
- National Center for Advancing Translational Sciences