Prenatal Genetic Testing on TikTok: Lay Narratives and Expertise
In recent years, social-media platforms have seen a rise in content related to pregnancy "gender reveals," wherein parents-to-be draw from the results of NIPT (noninvasive prenatal testing) to disclose the "gender" of their fetus. Such reveals are grounded in inaccurate understandings of NIPT as a technology and its relationship to fetal sex or gender information, understandings that can perpetuate harms for parents-to-be and infants alike. To explore where these understandings come from and how they are communicated, this study offers a thematic, narrative analysis of 40 recent TikTok videos posted by lay individuals discussing both NIPT and fetal sex chromosomes, sex, and/or gender. Findings reveal that almost all videos upheld both a diagnostic myth about NIPT (that the test is diagnostic rather than a probabilistic screening) and a conflation myth (wherein sex and gender are considered equivalent concepts). Videos fell into one of three narrative themes (i.e., personal storytelling; educational framing; co-storytelling), which were made persuasive by specific configurations of lay expertise (i.e., experiential; hybrid; relational, respectively). These results extend predominant theories of lay expertise by identifying and operationalizing distinct forms of lay expertise at work in the context of health communication on social media.
Authors
- Robin E. Jensen (ORCID: https://orcid.org/0000-0002-0216-3589)
- Susanna R. Cohen (ORCID: https://orcid.org/0000-0002-9198-8610)
- Caitlin Quade (ORCID: https://orcid.org/0000-0002-3082-8154)
- Naomi O. Riches (ORCID: https://orcid.org/0000-0001-9815-6932)
- Erin Johnson (ORCID: https://orcid.org/0000-0003-1150-1823)
- Emma Murdock
- Stephanie Arceneaux
Institutions
- University of Utah (US)
- University of Utah Health Care (US)
Publication Details
- Journal
- Health Communication
- Published
- 2026-09-08
- DOI
- https://doi.org/10.1080/10410236.2026.2729509
- Primary Topic
- Prenatal Screening and Diagnostics
- Type
- article
- Field-Weighted Citation Impact
- 0.00