Prenatal Genetic Testing on TikTok: Lay Narratives and Expertise

In recent years, social-media platforms have seen a rise in content related to pregnancy "gender reveals," wherein parents-to-be draw from the results of NIPT (noninvasive prenatal testing) to disclose the "gender" of their fetus. Such reveals are grounded in inaccurate understandings of NIPT as a technology and its relationship to fetal sex or gender information, understandings that can perpetuate harms for parents-to-be and infants alike. To explore where these understandings come from and how they are communicated, this study offers a thematic, narrative analysis of 40 recent TikTok videos posted by lay individuals discussing both NIPT and fetal sex chromosomes, sex, and/or gender. Findings reveal that almost all videos upheld both a diagnostic myth about NIPT (that the test is diagnostic rather than a probabilistic screening) and a conflation myth (wherein sex and gender are considered equivalent concepts). Videos fell into one of three narrative themes (i.e., personal storytelling; educational framing; co-storytelling), which were made persuasive by specific configurations of lay expertise (i.e., experiential; hybrid; relational, respectively). These results extend predominant theories of lay expertise by identifying and operationalizing distinct forms of lay expertise at work in the context of health communication on social media.

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Publication Details

Journal
Health Communication
Published
2026-09-08
DOI
https://doi.org/10.1080/10410236.2026.2729509
Primary Topic
Prenatal Screening and Diagnostics
Type
article
Field-Weighted Citation Impact
0.00
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article

Prenatal Genetic Testing on TikTok: Lay Narratives and Expertise

Robin E. Jensen, Susanna R. Cohen, Caitlin Quade, Naomi O. Riches et al.
Health Communication
Prenatal Screening and Diagnostics
article

Prenatal Genetic Testing on TikTok: Lay Narratives and Expertise

Robin E. Jensen, Susanna R. Cohen, Caitlin Quade, Naomi O. Riches, Erin Johnson, Emma Murdock, Stephanie Arceneaux
article en

Abstract

In recent years, social-media platforms have seen a rise in content related to pregnancy "gender reveals," wherein parents-to-be draw from the results of NIPT (noninvasive prenatal testing) to disclose the "gender" of their fetus. Such reveals are grounded in inaccurate understandings of NIPT as a technology and its relationship to fetal sex or gender information, understandings that can perpetuate harms for parents-to-be and infants alike. To explore where these understandings come from and how they are communicated, this study offers a thematic, narrative analysis of 40 recent TikTok videos posted by lay individuals discussing both NIPT and fetal sex chromosomes, sex, and/or gender. Findings reveal that almost all videos upheld both a diagnostic myth about NIPT (that the test is diagnostic rather than a probabilistic screening) and a conflation myth (wherein sex and gender are considered equivalent concepts). Videos fell into one of three narrative themes (i.e., personal storytelling; educational framing; co-storytelling), which were made persuasive by specific configurations of lay expertise (i.e., experiential; hybrid; relational, respectively). These results extend predominant theories of lay expertise by identifying and operationalizing distinct forms of lay expertise at work in the context of health communication on social media.

Health Communication
University of Utah (US), University of Utah Health Care (US)
Gender equality
Openalex Percentile: Top 7%
Prenatal Screening and Diagnostics
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