“Who Would Understand?” The Experience of Paediatric Stroke From the Perspective of Ethnically Minoritised Young Adults in the United Kingdom: An Interpretative Phenomenological Analysis

Paediatric stroke can have enduring impacts that influence life trajectories, including young adulthood, a crucial transitory period for establishing independence. Impacts can be heightened for ethnically minoritised populations due to racism in healthcare and general society. This qualitative study aimed to explore ethnically minoritised young adults’ experiences of paediatric stroke. Semi-structured interviews were conducted and analysed using interpretative phenomenological analysis. Reflexivity based on lived experience was embedded throughout the research process, supported through consultation with an advisory group. Results were reviewed by participants to ensure the findings’ credibility. Three themes were identified: Strengths and Strains from Family and Culture described the care and support from community alongside the burdensomeness and rejection from cultural stigma; Misfitting in a White Landscape demonstrated the intersectional marginalisation experienced from White systems; and Carrying the Weight and Finding the Way Through illustrated the emotional toll and resilience from negative social experiences contributing to advocacy for greater inclusion. The findings emphasise the importance of holistically considering the individual needs and experiences of ethnically minoritised young people who have had a paediatric stroke.