Addressing stroke family caregivers’ mental health through person‑ and family‑centred rehabilitation

Stroke is a leading cause of disability. Family caregivers play a critical role in supporting people living with stroke-related disability across the care continuum. Unfortunately, it is not standard clinical practice to prepare and support caregivers for their role. Caregivers’ responses to providing care are heterogenous, reflecting different strengths and challenges and the varying disability of people with stroke.Purpose We aim to summarize the literature on family caregiver experiences and support needs following stroke and highlight person- and family-centred care (PFCC) as a potential approach to addressing gaps in caregiver support and mental health.Materials and methods Literature was reviewed to examine caregiver mental health outcomes, caregiver-focused interventions, challenges integrating caregiver support into patient-centred models of care, and the potential role of PFCC.Results Caregivers are at increased risk of adverse mental health outcomes, including stress, burden, and psychological distress. Although interventions have been developed to improve caregiver health and well‑being, effectiveness has been mixed, with persistent challenges integrating caregiver‑focused programs into patient‑centred models of care.Conclusion PFCC offers a promising approach by recognizing and engaging family caregivers as partners in care planning and implementation, with potential to enhance caregiver support and mental health and wellbeing.

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Publication Details

Journal
Disability and Rehabilitation
Published
2026-09-08
DOI
https://doi.org/10.1080/09638288.2026.2723380
Primary Topic
Stroke Rehabilitation and Recovery
Type
article
Field-Weighted Citation Impact
0.00
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article

Addressing stroke family caregivers’ mental health through person‑ and family‑centred rehabilitation

Jill I. Cameron, Jasleen Grewal
Disability and Rehabilitation
Stroke Rehabilitation and Recovery
article

Addressing stroke family caregivers’ mental health through person‑ and family‑centred rehabilitation

Jill I. Cameron, Jasleen Grewal
article en

Abstract

Stroke is a leading cause of disability. Family caregivers play a critical role in supporting people living with stroke-related disability across the care continuum. Unfortunately, it is not standard clinical practice to prepare and support caregivers for their role. Caregivers’ responses to providing care are heterogenous, reflecting different strengths and challenges and the varying disability of people with stroke.Purpose We aim to summarize the literature on family caregiver experiences and support needs following stroke and highlight person- and family-centred care (PFCC) as a potential approach to addressing gaps in caregiver support and mental health.Materials and methods Literature was reviewed to examine caregiver mental health outcomes, caregiver-focused interventions, challenges integrating caregiver support into patient-centred models of care, and the potential role of PFCC.Results Caregivers are at increased risk of adverse mental health outcomes, including stress, burden, and psychological distress. Although interventions have been developed to improve caregiver health and well‑being, effectiveness has been mixed, with persistent challenges integrating caregiver‑focused programs into patient‑centred models of care.Conclusion PFCC offers a promising approach by recognizing and engaging family caregivers as partners in care planning and implementation, with potential to enhance caregiver support and mental health and wellbeing.

Disability and Rehabilitation
University Health Network (CA), University of Toronto (CA), Toronto Rehabilitation Institute (CA)
Openalex Percentile: Top 14%
Stroke Rehabilitation and Recovery
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