Amplifying user voices: reporting real-world experiences of a wearable device and digital application marketed for individuals with intellectual disabilities and their carers

Purpose People with intellectual disabilities may have difficulties communicating, especially when experiencing heightened arousal. This study aimed to assess user experiences with wearable technology paired with an application promoted in the community as an early detection system for signaling distressing experiences like anxiety in those with limited communication. Design/methodology/approach With little known about the user experience in this population, the authors conducted a qualitative study involving interviews with six individuals with intellectual disabilities who wore a smartwatch, nine direct support staff and ten residential supervisors who supported people using the technology. Findings Participants reported mixed views about the technology’s acceptability, utility and feasibility, highlighting the need for customization based on user preferences and needs. User input is also needed to guide design, enhance accessibility and optimize usability in the contexts where apps are used. Originality/value The participant experiences reported in this paper provide innovative and helpful information that can inform future evaluations of wearable technology specifically designed for people with intellectual disabilities.

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Publication Details

Journal
Advances in Mental Health and Intellectual Disabilities
Published
2026-08-26
DOI
https://doi.org/10.1108/amhid-10-2024-0041
Primary Topic
Down syndrome and intellectual disability research
Type
article
Field-Weighted Citation Impact
0.00
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article

Amplifying user voices: reporting real-world experiences of a wearable device and digital application marketed for individuals with intellectual disabilities and their carers

Yani Hamdani, Amanda Marcinkiewicz, Kendra Thomson, Tiziana Volpe et al.
Advances in Mental Health and Intellectual Disabilities
Down syndrome and intellectual disability research
article

Amplifying user voices: reporting real-world experiences of a wearable device and digital application marketed for individuals with intellectual disabilities and their carers

Yani Hamdani, Amanda Marcinkiewicz, Kendra Thomson, Tiziana Volpe, Sarah Ludmilla Bernier, Yona Lunsky, Johanna Lake, Carly Magnaaca
article en

Abstract

Purpose People with intellectual disabilities may have difficulties communicating, especially when experiencing heightened arousal. This study aimed to assess user experiences with wearable technology paired with an application promoted in the community as an early detection system for signaling distressing experiences like anxiety in those with limited communication. Design/methodology/approach With little known about the user experience in this population, the authors conducted a qualitative study involving interviews with six individuals with intellectual disabilities who wore a smartwatch, nine direct support staff and ten residential supervisors who supported people using the technology. Findings Participants reported mixed views about the technology’s acceptability, utility and feasibility, highlighting the need for customization based on user preferences and needs. User input is also needed to guide design, enhance accessibility and optimize usability in the contexts where apps are used. Originality/value The participant experiences reported in this paper provide innovative and helpful information that can inform future evaluations of wearable technology specifically designed for people with intellectual disabilities.

Advances in Mental Health and Intellectual Disabilities
Centre for Addiction and Mental Health (CA), Brock University (CA)
Quality Education
Openalex Percentile: Top 8%
Down syndrome and intellectual disability research
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