Brave Hearts Children's Initiative: A Motivational Strategy to Scale Up Pediatric Cardiac Surgery in Uganda

Congenital heart disease (CHD) is the leading cause of pediatric heart disease in Africa. In Uganda, approximately 16,000 infants are born annually with CHD, yet only a small proportion access timely surgery due to financial constraints and a shortage of pediatric cardiology and surgical expertise. Amid prolonged surgical waiting lists and ongoing efforts to expand local capacity, we introduced a morale-strengthening strategy focused on celebrating incremental surgical milestones to enhance motivation, ownership, and continuous quality improvement.The Brave Hearts Children's Initiative was launched on December 7, 2023, at the Uganda Heart Institute under the theme "Little Hearts, Big Courage." Initially conceived as a children's Christmas event, it evolved into a structured platform for advocacy, family support, and fundraising. The initiative highlights annual achievements in pediatric cardiac surgery and brings together families, clinicians, and key stakeholders, including government, academic institutions, and international partners.A key system change involved shifting surgical listing and patient selection from the surgical team to the cardiology team, improving coordination and reducing delays. This restructuring, alongside increased government and partner support, was associated with improved surgical output.Following the second Brave Hearts Children's event, surgical volume rose to 8 to 12 open-heart and approximately 8 closed-heart procedures per month. The waiting list is now systematically managed, team engagement has improved, and families report better psychosocial support.Celebrating milestones beyond statistics can strengthen team cohesion, build stakeholder trust, and support sustainable growth of pediatric cardiac services in resource-limited settings.

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Publication Details

Journal
World Journal for Pediatric and Congenital Heart Surgery
Published
2026-08-20
DOI
https://doi.org/10.1177/21501351261469542
Primary Topic
Congenital Heart Disease Studies
Type
article
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article

Brave Hearts Children's Initiative: A Motivational Strategy to Scale Up Pediatric Cardiac Surgery in Uganda

Emma Ndagire, Hafisa Kasule, Cephas Mijumbi, Sulaiman Lubega et al.
World Journal for Pediatric and Congenital Heart Surgery
Congenital Heart Disease Studies
article

Brave Hearts Children's Initiative: A Motivational Strategy to Scale Up Pediatric Cardiac Surgery in Uganda

Emma Ndagire, Hafisa Kasule, Cephas Mijumbi, Sulaiman Lubega, Gloria Owomugisha, Judith Namuyonga, Jane Ruth Aceng, Olive Sentumbwe, Aisha Nakato, Aliku Twalib, Michael Oketcho, Tom Mwambu, Muhoozi Rwakaryebe, John Kebba, Nodreen Ayupo, Peter Lwabi, Ann Nolan Oketayot, Brian Twesiime, John. O.O. Omagino, Francis Omaswa, Peace Masiko Hasahya
article en

Abstract

Congenital heart disease (CHD) is the leading cause of pediatric heart disease in Africa. In Uganda, approximately 16,000 infants are born annually with CHD, yet only a small proportion access timely surgery due to financial constraints and a shortage of pediatric cardiology and surgical expertise. Amid prolonged surgical waiting lists and ongoing efforts to expand local capacity, we introduced a morale-strengthening strategy focused on celebrating incremental surgical milestones to enhance motivation, ownership, and continuous quality improvement.The Brave Hearts Children's Initiative was launched on December 7, 2023, at the Uganda Heart Institute under the theme "Little Hearts, Big Courage." Initially conceived as a children's Christmas event, it evolved into a structured platform for advocacy, family support, and fundraising. The initiative highlights annual achievements in pediatric cardiac surgery and brings together families, clinicians, and key stakeholders, including government, academic institutions, and international partners.A key system change involved shifting surgical listing and patient selection from the surgical team to the cardiology team, improving coordination and reducing delays. This restructuring, alongside increased government and partner support, was associated with improved surgical output.Following the second Brave Hearts Children's event, surgical volume rose to 8 to 12 open-heart and approximately 8 closed-heart procedures per month. The waiting list is now systematically managed, team engagement has improved, and families report better psychosocial support.Celebrating milestones beyond statistics can strengthen team cohesion, build stakeholder trust, and support sustainable growth of pediatric cardiac services in resource-limited settings.

World Journal for Pediatric and Congenital Heart Surgery
World Health Organization - Pakistan (PK), Uganda Management Institute (UG), Mulago Hospital (UG), Ndejje University (UG), Soroti University (UG), Makerere University (UG), Uganda Christian University (UG)
Openalex Percentile: Top 10%
Congenital Heart Disease Studies
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