ME/CFS and the emotional toll of persistent disbelief: from epistemic to affective injustice

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating chronic illness whose sufferers are frequently met with disbelief, stigmatization, and psychologization in both clinical and social contexts. Recent work has used the concept of "epistemic injustice" to illuminate important dimensions of this problem, especially the ways in which ME/CFS patients are discredited as knowers and denied adequate interpretive resources. This paper argues that the harms associated with persistent disbelief in ME/CFS are not exhausted by this epistemic dimension. Drawing on recent philosophical work on affective injustice, I argue that persistent disbelief can also impair patients' affective lives in distinctive and socially patterned ways. More specifically, I argue that individuals with ME/CFS are burdened by unjust affective expectations, pressured into norm-conforming forms of emotional self-presentation, exposed to pathologizing and gaslighting interpretations of their affective experience, denied uptake for apt emotional responses, and exploited through forms of emotional labor and affective appropriation. Conceptualizing these harms in terms of affective injustice, I argue, helps to capture dimensions of marginalization that a focus on testimony and understanding alone leaves obscure. The paper concludes by considering objections and drawing out implications for healthcare and philosophy of medicine.