Sociodemographic Characteristics, Research Roles, Training Needs, and Perceived Barriers Among Individuals Engaged in ACB Research and Data Governance in Canada
Background: Race-based data collection and governance remain inconsistent across Canadian health systems, limiting the visibility of African, Caribbean, and Black (ACB) communities. This paper presents a data profile of people working in or alongside ACB-serving organizations in Canada. Methods: A national cross-sectional survey captured sociodemographic characteristics, organizational affiliations, research roles, perceptions of data governance, training needs, barriers to participation, and self-rated research capacities of individuals engaged in ACB research and data governance. Eligible participants were individuals engaged in research, evaluation, data collection, data administration, or related activities in ACB-serving organizations across Canada. We conducted descriptive analysis. Results: Among 384 respondents, 45.8% lived in Ontario and 23.7% in Quebec. Most identified as female (72.1%), and 59.9% held a bachelor’s degree or higher. Many reported involvement in data collection (48.2%), data analysis (41.7%), and data management (41.4%). Training needs were frequently identified in cultural competency (48.7%), research methodology (44.3%), and data analysis (44.3%). Common barriers included lack of representation (46.1%), language challenges (41.4%), historical mistrust (37.5%), and concerns about data sovereignty (37.5%). Confidence was highest for data collection (56.4% rating 7–9) and lowest for securing research funding (34.8% rating 1–3). Conclusions: This data profile provides foundational evidence to support equitable, community-aligned data governance policy and practice within ACB-serving organizational contexts in Canada.
Authors
- Egbe B. Etowa (ORCID: https://orcid.org/0000-0003-0982-755X)
- Jude Mary Cénat (ORCID: https://orcid.org/0000-0003-3628-6904)
- Josephine Etowa (ORCID: https://orcid.org/0000-0003-2019-7958)
- Amos Buh (ORCID: https://orcid.org/0000-0002-0732-4193)
- Doris M. Kakuru (ORCID: https://orcid.org/0000-0003-1046-7678)
- Anita Brown-Johnson
- Charles Daboné (ORCID: https://orcid.org/0000-0003-2896-9967)
- Michelle Sraha-Yeboah (ORCID: https://orcid.org/0000-0003-2986-6679)
- A Jacques
- Apondi J. Odhiambo
- Francisca I. Omorodion
- Akalewold T. Gebremeskel
- Glenda Muzenda
Institutions
- University of Ottawa (CA)
- Public Health Agency of Canada (CA)
- University of Victoria (CA)
- McGill University Health Centre (CA)
- Somerset Community College (US)
- Toronto Metropolitan University (CA)
- University of Windsor (CA)
Publication Details
- Journal
- Trends in Public Health
- Published
- 2026-08-14
- DOI
- https://doi.org/10.3390/tph1020013
- Primary Topic
- Race, Genetics, and Society
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Social Sciences and Humanities Research Council of Canada