Rare Disease Centres of Expertise Roundtable

Summary of the report to the Australian Government Department of Health, Disability and Ageing Chronic Conditions Policy and Projects Section, funded as part of the Rare Multistakeholder Consultation Program. The Rare Disease Centres of Expertise Roundtable was funded by the Australian Government, Department of Health, Disability and Ageing via the grant Chronic Conditions Prevention and Management 4-KK70NSN.The Roundtable team, based at the University of New South Wales, School of Medicine, Discipline of Paediatric and Child Health, included:• Prof Adam Jaffe, John Beveridge Professor of Paediatrics and Respiratory Paediatrician• A/Prof Emma Palmer, Clinical Geneticist• Sam Flecha, Executive Officer• Krista Recsei, Program Manager• Natalie Roberts, Project Officer• Maddison Smith, Project OfficerDr Karen Birkenhead and Dr Shuang Liang (UNSW, School of Population Health) provided vital implementation science expertise.