Maternalism in Palliative Care: A Case for Relational Autonomy and Informed Non-Dissent

BACKGROUND: Clinicians often face situations in which patients or families desire aggressive care that medical teams believe offers no meaningful benefit. Traditional shared decision-making frameworks may inadequately address these tensions. CASE: A 53-year-old woman with metastatic lung cancer desired full resuscitation despite progressive multisystem organ failure. She identified as a "fighter" but faced a clinical dilemma: adequate pain control required accepting respiratory compromise. DISCUSSION: We apply the bioethical construct of maternalism, integrating relational autonomy and informed non-dissent to support clinician-guided decision making that preserves patient values while unburdening families from impossible choices. CONCLUSION: Maternalism offers palliative care clinicians a theoretically grounded approach for navigating value-laden decisions when patients cannot or choose not to bear the weight of deciding.

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Publication Details

Journal
Journal of Palliative Medicine
Published
2026-07-23
DOI
https://doi.org/10.1177/10966218261472561
Primary Topic
Ethics and Legal Issues in Pediatric Healthcare
Type
article
Field-Weighted Citation Impact
0.00
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article

Maternalism in Palliative Care: A Case for Relational Autonomy and Informed Non-Dissent

Julia Cain, Toluwalase A. Ajayi, Kyle P. Edmonds, Heidi N. Yeung et al.
Journal of Palliative Medicine
Ethics and Legal Issues in Pediatric Healthcare
article

Maternalism in Palliative Care: A Case for Relational Autonomy and Informed Non-Dissent

Julia Cain, Toluwalase A. Ajayi, Kyle P. Edmonds, Heidi N. Yeung, Chris Onderdonk, Julia Wilkins
article en

Abstract

BACKGROUND: Clinicians often face situations in which patients or families desire aggressive care that medical teams believe offers no meaningful benefit. Traditional shared decision-making frameworks may inadequately address these tensions. CASE: A 53-year-old woman with metastatic lung cancer desired full resuscitation despite progressive multisystem organ failure. She identified as a "fighter" but faced a clinical dilemma: adequate pain control required accepting respiratory compromise. DISCUSSION: We apply the bioethical construct of maternalism, integrating relational autonomy and informed non-dissent to support clinician-guided decision making that preserves patient values while unburdening families from impossible choices. CONCLUSION: Maternalism offers palliative care clinicians a theoretically grounded approach for navigating value-laden decisions when patients cannot or choose not to bear the weight of deciding.

Journal of Palliative Medicine
UC San Diego Health System (US), Rady Children's Hospital-San Diego (US)
Peace, Justice and strong institutions
Openalex Percentile: Top 6%
Ethics and Legal Issues in Pediatric Healthcare
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