Maternalism in Palliative Care: A Case for Relational Autonomy and Informed Non-Dissent
BACKGROUND: Clinicians often face situations in which patients or families desire aggressive care that medical teams believe offers no meaningful benefit. Traditional shared decision-making frameworks may inadequately address these tensions. CASE: A 53-year-old woman with metastatic lung cancer desired full resuscitation despite progressive multisystem organ failure. She identified as a "fighter" but faced a clinical dilemma: adequate pain control required accepting respiratory compromise. DISCUSSION: We apply the bioethical construct of maternalism, integrating relational autonomy and informed non-dissent to support clinician-guided decision making that preserves patient values while unburdening families from impossible choices. CONCLUSION: Maternalism offers palliative care clinicians a theoretically grounded approach for navigating value-laden decisions when patients cannot or choose not to bear the weight of deciding.
Authors
- Julia Cain (ORCID: https://orcid.org/0000-0002-6758-8916)
- Toluwalase A. Ajayi
- Kyle P. Edmonds (ORCID: https://orcid.org/0000-0002-0790-5211)
- Heidi N. Yeung
- Chris Onderdonk (ORCID: https://orcid.org/0009-0000-3959-6129)
- Julia Wilkins
Institutions
- UC San Diego Health System (US)
- Rady Children's Hospital-San Diego (US)
Publication Details
- Journal
- Journal of Palliative Medicine
- Published
- 2026-07-23
- DOI
- https://doi.org/10.1177/10966218261472561
- Primary Topic
- Ethics and Legal Issues in Pediatric Healthcare
- Type
- article
- Field-Weighted Citation Impact
- 0.00