My Voice Matters in Research: Co-producing Inclusive Mental Health Research Approaches with Underrepresented Young People

<ns5:p> Background Children and young people from marginalised and underrepresented communities are frequently under-represented in mental health research, resulting in an evidence base that does not inclusively represent all young people’s needs to inform service design and development. This underrepresentation contributes to inequalities in access to, engagement with, and outcomes from mental health services. There is a need for research approaches that actively address structural barriers and meaningfully involve young people as contributors to knowledge generation. The <ns5:italic>My Voice Matters in Research</ns5:italic> study aimed to identify barriers and facilitators to participation in mental health research among underrepresented young people, co-produce practical recommendations to improve engagement, and develop inclusive training resources for researchers, practitioners and policymakers. Methods A qualitative participatory arts design was employed, in collaboration with a not-for-profit social enterprise that co-creates immersive audio stories, films, theatre and music to bring lived experience to life. Twenty-five children and young people aged 13–20 years from Global Majority backgrounds, neurodiverse communities, justice-involved contexts, and LGBTQIA+ identities took part in four themed workshops. Additional consultation and interpretation events involved parents, caregivers and professional stakeholders. Data sources included workshop discussions, creative and visual outputs, field notes and feedback. Reflexive thematic analysis was undertaken, with stakeholders contributing to interpretation and sense-checking of findings. Results Barriers to research participation were relational, emotional and structural, including lack of trust in institutions, unclear communication, anxiety in formal or unfamiliar environments, concerns about privacy and disclosure, and practical constraints such as transport and timing. Facilitators included creative and flexible methods, clear and direct communication, culturally and emotionally safe spaces, opportunities to build relationships, and visible inclusion and choice. Conclusions Participatory arts methods supported engagement by enabling non-verbal expression, redistributing power and accommodating diverse communication preferences. Experiences varied within and across groups, highlighting the importance of intersectional and individualised approaches. </ns5:p>

Authors

Institutions

Publication Details

Journal
NIHR Open Research
Published
2026-07-22
DOI
https://doi.org/10.3310/nihropenres.14368.1
Primary Topic
Participatory Visual Research Methods
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

My Voice Matters in Research: Co-producing Inclusive Mental Health Research Approaches with Underrepresented Young People

Diana McLeod, Sarah Parry, Naomi Shenton, Ashgan Mahyoub et al.
NIHR Open Research
Participatory Visual Research Methods
article

My Voice Matters in Research: Co-producing Inclusive Mental Health Research Approaches with Underrepresented Young People

Diana McLeod, Sarah Parry, Naomi Shenton, Ashgan Mahyoub, Paul Gray, Paula Galvan Rodriguez, Sue Wood
article en

Abstract

<ns5:p> Background Children and young people from marginalised and underrepresented communities are frequently under-represented in mental health research, resulting in an evidence base that does not inclusively represent all young people’s needs to inform service design and development. This underrepresentation contributes to inequalities in access to, engagement with, and outcomes from mental health services. There is a need for research approaches that actively address structural barriers and meaningfully involve young people as contributors to knowledge generation. The <ns5:italic>My Voice Matters in Research</ns5:italic> study aimed to identify barriers and facilitators to participation in mental health research among underrepresented young people, co-produce practical recommendations to improve engagement, and develop inclusive training resources for researchers, practitioners and policymakers. Methods A qualitative participatory arts design was employed, in collaboration with a not-for-profit social enterprise that co-creates immersive audio stories, films, theatre and music to bring lived experience to life. Twenty-five children and young people aged 13–20 years from Global Majority backgrounds, neurodiverse communities, justice-involved contexts, and LGBTQIA+ identities took part in four themed workshops. Additional consultation and interpretation events involved parents, caregivers and professional stakeholders. Data sources included workshop discussions, creative and visual outputs, field notes and feedback. Reflexive thematic analysis was undertaken, with stakeholders contributing to interpretation and sense-checking of findings. Results Barriers to research participation were relational, emotional and structural, including lack of trust in institutions, unclear communication, anxiety in formal or unfamiliar environments, concerns about privacy and disclosure, and practical constraints such as transport and timing. Facilitators included creative and flexible methods, clear and direct communication, culturally and emotionally safe spaces, opportunities to build relationships, and visible inclusion and choice. Conclusions Participatory arts methods supported engagement by enabling non-verbal expression, redistributing power and accommodating diverse communication preferences. Experiences varied within and across groups, highlighting the importance of intersectional and individualised approaches. </ns5:p>

NIHR Open ResearchVol. 6
Manchester Metropolitan University (GB), University of Hull (GB), Manchester Academic Health Science Centre (GB), Hull University Teaching Hospitals NHS Trust (GB), University of Manchester (GB), Manchester University NHS Foundation Trust (GB), Pennine Care NHS Foundation Trust (GB)
Reduced inequalities
Openalex Percentile: Top 3%
Participatory Visual Research Methods
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.