A nonrandomised feasibility evaluation of a home‑based intervention for parents of adolescents with learning disabilities, with or without autism

This study aims to determine the feasibility and acceptability of delivering ACHIEVE-a home‑based, parent‑coached OT/SLT intervention-in everyday UK practice and to describe recruitment/retention, data completeness, working alliance, delivery logistics, and exploratory changes in parent‑reported functional, behavioural, communication and stress outcomes. Single‑arm, non‑randomised feasibility study aligned with CONSORT pilot/feasibility guidance. Thirty‑six families of adolescents (11-19 years) with moderate-severe learning disabilities (many also autistic) were recruited via three special schools. Individually tailored OT/SLT sessions focussed on parent‑nominated goals in self‑care/daily living, communication, and behaviour. Hybrid delivery (home visits + secure video); feasibility and acceptability were primary outcomes; exploratory secondary outcomes included DBC, HSQ, APSI, COPM, and GAS. Recruitment via schools was via a convenience sample (36 families). Attendance was high (159/190 sessions; 83.7%) with 99 home and 59 video sessions. Endpoint data were obtained for 22 families. Parents reported strong alliance (WAI median 89.5, IQR 73.0-91.0). Exploratory signals suggested improvement: DBC T‑score - 3.90 (p = 0.004; n = 19); HSQ mean severity - 0.71 (p = 0.018; n = 19); APSI total - 6.80 (p = 0.046; n = 20). COPM median change + 3.0 (performance) and + 4.0 (satisfaction) (both p < 0.001; n = 17). GAS modelling suggested dose effects: ~ 7 sessions linked to ~ 80% probability of achieving expected goals, and ~ 10 to exceeding them (n = 31). CONCLUSION: ACHIEVE was feasible and acceptable in UK practice with high engagement and manageable data collection. Dose-response signals and alliance strength support a minimum session count and continued coaching emphasis. Findings inform outcome selection, dose, and schedules for a definitive trial; clinical changes remain exploratory. WHAT IS KNOWN: • Adolescents with learning disabilities (often with co-occurring autism) and their families struggle to access practical home‑based support; robust evidence is limited. • Family‑centred, parent‑coached allied‑health interventions are promising but under‑studied for adolescents and in home/hybrid formats. WHAT IS NEW: • ACHIEVE-a home‑based Occupational therapy/Speech & Language Therapy, parent‑nominated goal programme-proved feasible and acceptable with strong therapeutic alliance for families of adolescents with learning disabilities with or without autism. • Exploratory improvements and a dose signal (~7-10 sessions) guide scheduling and outcomes for a future comparative trial.

Authors

Institutions

Publication Details

Journal
European Journal of Pediatrics
Published
2026-07-17
DOI
https://doi.org/10.1007/s00431-026-07246-1
Primary Topic
Family and Disability Support Research
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

A nonrandomised feasibility evaluation of a home‑based intervention for parents of adolescents with learning disabilities, with or without autism

Katy Strudwick, Carla Rush, Vicky Slonims, Ashley Liew et al.
European Journal of Pediatrics
Family and Disability Support Research
article

A nonrandomised feasibility evaluation of a home‑based intervention for parents of adolescents with learning disabilities, with or without autism

Katy Strudwick, Carla Rush, Vicky Slonims, Ashley Liew, Michael Absoud, Amy Waters, Gordon Forbes, Karen Pratt, Lisa Mackey
article en

Abstract

This study aims to determine the feasibility and acceptability of delivering ACHIEVE-a home‑based, parent‑coached OT/SLT intervention-in everyday UK practice and to describe recruitment/retention, data completeness, working alliance, delivery logistics, and exploratory changes in parent‑reported functional, behavioural, communication and stress outcomes. Single‑arm, non‑randomised feasibility study aligned with CONSORT pilot/feasibility guidance. Thirty‑six families of adolescents (11-19 years) with moderate-severe learning disabilities (many also autistic) were recruited via three special schools. Individually tailored OT/SLT sessions focussed on parent‑nominated goals in self‑care/daily living, communication, and behaviour. Hybrid delivery (home visits + secure video); feasibility and acceptability were primary outcomes; exploratory secondary outcomes included DBC, HSQ, APSI, COPM, and GAS. Recruitment via schools was via a convenience sample (36 families). Attendance was high (159/190 sessions; 83.7%) with 99 home and 59 video sessions. Endpoint data were obtained for 22 families. Parents reported strong alliance (WAI median 89.5, IQR 73.0-91.0). Exploratory signals suggested improvement: DBC T‑score - 3.90 (p = 0.004; n = 19); HSQ mean severity - 0.71 (p = 0.018; n = 19); APSI total - 6.80 (p = 0.046; n = 20). COPM median change + 3.0 (performance) and + 4.0 (satisfaction) (both p < 0.001; n = 17). GAS modelling suggested dose effects: ~ 7 sessions linked to ~ 80% probability of achieving expected goals, and ~ 10 to exceeding them (n = 31). CONCLUSION: ACHIEVE was feasible and acceptable in UK practice with high engagement and manageable data collection. Dose-response signals and alliance strength support a minimum session count and continued coaching emphasis. Findings inform outcome selection, dose, and schedules for a definitive trial; clinical changes remain exploratory. WHAT IS KNOWN: • Adolescents with learning disabilities (often with co-occurring autism) and their families struggle to access practical home‑based support; robust evidence is limited. • Family‑centred, parent‑coached allied‑health interventions are promising but under‑studied for adolescents and in home/hybrid formats. WHAT IS NEW: • ACHIEVE-a home‑based Occupational therapy/Speech & Language Therapy, parent‑nominated goal programme-proved feasible and acceptable with strong therapeutic alliance for families of adolescents with learning disabilities with or without autism. • Exploratory improvements and a dose signal (~7-10 sessions) guide scheduling and outcomes for a future comparative trial.

European Journal of PediatricsVol. 185(8)
King's College London (GB), Evelina London Children's Healthcare (GB)
Quality Education
Openalex Percentile: Top 6%
Family and Disability Support Research
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.