England's Dementia Diagnosis Landscape: Strengths, Limitations, and Future Directions

ABSTRACT Background The National Health Service (NHS) England Primary Care Dementia Data (PCDD) provides a comprehensive dementia registry, underpinning national policy to improve diagnosis, care, and support. Methods This paper evaluates the PCDD in comparison with international quality dementia registries (SveDem, NorCog, ADNeT). Results We highlight strengths in PCDD coverage and case ascertainment, but also weaknesses in diagnostic specificity and post‐diagnostic metrics. Conclusions We review currently collected metrics and discuss potential data expansions, including dementia severity and NICE‐approved therapy uptake, alongside new targets, such as an 18‐week standard for memory assessment service referrals.

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Publication Details

Journal
International Journal of Geriatric Psychiatry
Published
2026-07-01
DOI
https://doi.org/10.1002/gps.70236
Primary Topic
Dementia and Cognitive Impairment Research
Type
article
Field-Weighted Citation Impact
0.00
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article

England's Dementia Diagnosis Landscape: Strengths, Limitations, and Future Directions

Robert Howard, Jemma Hazan, Jeremy D. Isaacs
International Journal of Geriatric Psychiatry
Dementia and Cognitive Impairment Research
article

England's Dementia Diagnosis Landscape: Strengths, Limitations, and Future Directions

Robert Howard, Jemma Hazan, Jeremy D. Isaacs
article en

Abstract

ABSTRACT Background The National Health Service (NHS) England Primary Care Dementia Data (PCDD) provides a comprehensive dementia registry, underpinning national policy to improve diagnosis, care, and support. Methods This paper evaluates the PCDD in comparison with international quality dementia registries (SveDem, NorCog, ADNeT). Results We highlight strengths in PCDD coverage and case ascertainment, but also weaknesses in diagnostic specificity and post‐diagnostic metrics. Conclusions We review currently collected metrics and discuss potential data expansions, including dementia severity and NICE‐approved therapy uptake, alongside new targets, such as an 18‐week standard for memory assessment service referrals.

International Journal of Geriatric PsychiatryVol. 41(7)
St George's, University of London (GB), North East London NHS Foundation Trust (GB), St George’s University Hospitals NHS Foundation Trust (GB), University College London (GB)
Partnerships for the goals
Openalex Percentile: Top 7%
Dementia and Cognitive Impairment Research
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England's Dementia Diagnosis Landscape: Strengths, Limitations, and Future Directions — Robert Howard, Jemma Hazan, et al. · International Journal of Geriatric Psychiatry (2026) | TGRS Research Map | TGRS