Data-informed healthcare service design for multiple long-term conditions using online patient stories

ABSTRACT: Conventional service design methods are valuable for improving healthcare experience, but are limited in scale and information capture. Based on a constructed database of 2,320 stories from patients and carers with multiple long-term conditions (MLTC), this paper shows how real-life experiences can be used to inform healthcare service redesign. By combining the richness of qualitative insight with the breadth and representativeness of large-scale data, it identifies “Continuity of care”, “Care coordination”, and “Temporal – Access to services” as the priority redesign opportunities for MLTC.

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Publication Details

Journal
Proceedings of the Design Society
Published
2026-07-02
DOI
https://doi.org/10.1017/pds.2026.10532
Primary Topic
Chronic Disease Management Strategies
Type
article
Field-Weighted Citation Impact
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article

Data-informed healthcare service design for multiple long-term conditions using online patient stories

Ji Han, Saeema Ahmed-Kristensen, Marta Staff
Proceedings of the Design Society
Chronic Disease Management Strategies
article

Data-informed healthcare service design for multiple long-term conditions using online patient stories

Ji Han, Saeema Ahmed-Kristensen, Marta Staff
article en

Abstract

ABSTRACT: Conventional service design methods are valuable for improving healthcare experience, but are limited in scale and information capture. Based on a constructed database of 2,320 stories from patients and carers with multiple long-term conditions (MLTC), this paper shows how real-life experiences can be used to inform healthcare service redesign. By combining the richness of qualitative insight with the breadth and representativeness of large-scale data, it identifies “Continuity of care”, “Care coordination”, and “Temporal – Access to services” as the priority redesign opportunities for MLTC.

Proceedings of the Design SocietyVol. 6
University of Exeter (GB)
Openalex Percentile: Top 8%
Chronic Disease Management Strategies
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