“I Go but I Don’t Participate”: A Scoping Review With Thematic Synthesis of the Experiences of Voice Disorders in Adulthood

INTRODUCTION: Voice disorders affect nearly one in three people during their lifetime and are associated with significant reductions in quality of life. Despite this, limited research has explored the experiences of adults living with voice disorders. METHODS: This review synthesizes patient-reported experiences and impacts of voice disorders in adulthood. Six databases (PubMed, CINAHL, Web of Science, Embase, Cochrane, and Scopus) were systematically searched, and studies were screened using an established scoping review framework. The included studies were analyzed following recognized principles of qualitative meta-synthesis. RESULTS: From 3525 studies identified, six met study inclusion criteria and underwent thematic synthesis. Five overarching themes emerged: 1) My voice doesn't sound or feel like it used to; 2) My voice disorder has diminished my emotional well-being and self-confidence; 3) My voice disorder impacts my life participation; 4) Stigma hurts, support helps; 5) Living with my voice disorder means learning to adapt. CONCLUSIONS: Recurring themes surrounding psychosocial well-being and life participation restriction highlight the need for clinicians to develop counseling skills and knowledge of when and how to refer for additional support. Clinicians are urged to use a more holistic approach to voice assessment and treatment, acknowledging that the impacts of voice disorders often extend well beyond the larynx.