A Qualitative Exploration of Paid Carers' Experience of Caring for Men With Intellectual and/or Developmental Disability and Harmful Sexual Behaviour
BACKGROUND: Paid carers supporting men with Intellectual and Developmental Disability and Harmful Sexual Behaviour face complex challenges which can affect the carers well-being and quality of care for the person they support. This study explores carers' lived experiences of caring for this group of men. METHOD: Six paid carers were interviewed regarding their experience of providing care. Semi-structured interviews were conducted online and analysed using Interpretative Phenomenological Analysis. RESULTS: Three superordinate themes were identified through the analysis: 'The balance of drive and burden', 'External influence on care provided' and 'Co-producing care and support'. Carers found the role emotionally demanding and needed support from others to cope. The importance of person-centred care and carer responsiveness was also emphasised. CONCLUSION: This study highlights the emotional demands and negative public perception faced by paid carers. Clinical implications include enhancing professional recognition, strengthening organisational support and promoting emotional processing.
Authors
- Lisa Richardson
- Glynis H. Murphy (ORCID: https://orcid.org/0000-0001-7817-5861)
- Eleanor Drew
- John Rose (ORCID: https://orcid.org/0000-0003-2672-9767)
Institutions
- University of Kent (GB)
- University College Birmingham (GB)
- University of Birmingham (GB)
Publication Details
- Journal
- Journal of Applied Research in Intellectual Disabilities
- Published
- 2026-06-30
- DOI
- https://doi.org/10.1111/jar.70274
- Primary Topic
- Family and Disability Support Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Institute for Health and Care Research