A Qualitative Exploration of Paid Carers' Experience of Caring for Men With Intellectual and/or Developmental Disability and Harmful Sexual Behaviour

BACKGROUND: Paid carers supporting men with Intellectual and Developmental Disability and Harmful Sexual Behaviour face complex challenges which can affect the carers well-being and quality of care for the person they support. This study explores carers' lived experiences of caring for this group of men. METHOD: Six paid carers were interviewed regarding their experience of providing care. Semi-structured interviews were conducted online and analysed using Interpretative Phenomenological Analysis. RESULTS: Three superordinate themes were identified through the analysis: 'The balance of drive and burden', 'External influence on care provided' and 'Co-producing care and support'. Carers found the role emotionally demanding and needed support from others to cope. The importance of person-centred care and carer responsiveness was also emphasised. CONCLUSION: This study highlights the emotional demands and negative public perception faced by paid carers. Clinical implications include enhancing professional recognition, strengthening organisational support and promoting emotional processing.

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Publication Details

Journal
Journal of Applied Research in Intellectual Disabilities
Published
2026-06-30
DOI
https://doi.org/10.1111/jar.70274
Primary Topic
Family and Disability Support Research
Type
article
Field-Weighted Citation Impact
0.00

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article

A Qualitative Exploration of Paid Carers' Experience of Caring for Men With Intellectual and/or Developmental Disability and Harmful Sexual Behaviour

Lisa Richardson, Glynis H. Murphy, Eleanor Drew, John Rose
Journal of Applied Research in Intellectual Disabilities
Family and Disability Support Research
article

A Qualitative Exploration of Paid Carers' Experience of Caring for Men With Intellectual and/or Developmental Disability and Harmful Sexual Behaviour

Lisa Richardson, Glynis H. Murphy, Eleanor Drew, John Rose
article en

Abstract

BACKGROUND: Paid carers supporting men with Intellectual and Developmental Disability and Harmful Sexual Behaviour face complex challenges which can affect the carers well-being and quality of care for the person they support. This study explores carers' lived experiences of caring for this group of men. METHOD: Six paid carers were interviewed regarding their experience of providing care. Semi-structured interviews were conducted online and analysed using Interpretative Phenomenological Analysis. RESULTS: Three superordinate themes were identified through the analysis: 'The balance of drive and burden', 'External influence on care provided' and 'Co-producing care and support'. Carers found the role emotionally demanding and needed support from others to cope. The importance of person-centred care and carer responsiveness was also emphasised. CONCLUSION: This study highlights the emotional demands and negative public perception faced by paid carers. Clinical implications include enhancing professional recognition, strengthening organisational support and promoting emotional processing.

Journal of Applied Research in Intellectual DisabilitiesVol. 39(4)
University of Kent (GB), University College Birmingham (GB), University of Birmingham (GB)
National Institute for Health and Care Research
Gender equality
Openalex Percentile: Top 6%
Family and Disability Support Research
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