Mothers’ experience of supporting their very preterm child’s development over the first two years of life: a qualitative reflexive thematic analysis

PURPOSE: To explore the experience of mothers supporting their very preterm child's development in the first two years of life. MATERIALS AND METHODS: = 9). Data were analysed using reflexive thematic analysis. RESULTS: Three themes describe layers of support that mothers used across the two years. The first theme, Drawing on internal resources, possibility and self-efficacy, explores the internal resources of mothers. Theme 2: It takes a village: support from family and social network, explores important relationships throughout their experience. The final theme: When healthcare works: the right people, the right support, describe the support mothers received from early intervention and healthcare professionals. CONCLUSIONS: Mothers' experiences can be influenced by the internal resources, their social networks and formalised, structured support from healthcare services, such as early intervention programs. Our results highlight the importance of supportive healthcare relationships, accessible early intervention services and opportunities for connection with other parents with similar experiences.

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Publication Details

Journal
Disability and Rehabilitation
Published
2026-06-29
DOI
https://doi.org/10.1080/09638288.2026.2694101
Primary Topic
Infant Development and Preterm Care
Type
article
Field-Weighted Citation Impact
0.00
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article

Mothers’ experience of supporting their very preterm child’s development over the first two years of life: a qualitative reflexive thematic analysis

Kate L. Cameron, Francyne Finlayson, Alicia J. Spittle, Louisa Remedios et al.
Disability and Rehabilitation
Infant Development and Preterm Care
article

Mothers’ experience of supporting their very preterm child’s development over the first two years of life: a qualitative reflexive thematic analysis

Kate L. Cameron, Francyne Finlayson, Alicia J. Spittle, Louisa Remedios, Joy E. Olsen
article en

Abstract

PURPOSE: To explore the experience of mothers supporting their very preterm child's development in the first two years of life. MATERIALS AND METHODS: = 9). Data were analysed using reflexive thematic analysis. RESULTS: Three themes describe layers of support that mothers used across the two years. The first theme, Drawing on internal resources, possibility and self-efficacy, explores the internal resources of mothers. Theme 2: It takes a village: support from family and social network, explores important relationships throughout their experience. The final theme: When healthcare works: the right people, the right support, describe the support mothers received from early intervention and healthcare professionals. CONCLUSIONS: Mothers' experiences can be influenced by the internal resources, their social networks and formalised, structured support from healthcare services, such as early intervention programs. Our results highlight the importance of supportive healthcare relationships, accessible early intervention services and opportunities for connection with other parents with similar experiences.

Disability and Rehabilitation
Royal Women's Hospital (AU), The University of Melbourne (AU), Physiotherapy New Zealand (NZ), Murdoch Children's Research Institute (AU)
Gender equality
Openalex Percentile: Top 6%
Infant Development and Preterm Care
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