Parental Perceptions of Neuropsychological Assessment in Children with Cerebral Palsy

Norwegian children with cerebral palsy (CP) are offered regular neuropsychological assessments, but little is known about parental perspectives on the assessments. Survey responses from 181 parents were compared with data in the Norwegian Quality and Surveillance Registry for Cerebral Palsy. Parental satisfaction was not associated with the child's IQ, 94% of the parents considered the conclusion accurate/nearly accurate, and 65% believed that the assessment contributed positively to follow-up. Among 63 children reported by parents as having normal cognition, 62 had normal IQ. Among 55 children parents perceived as functioning significantly below age-expected, 32 (58%) were registered with an intellectual disability.