Integrating Lived Experience Perspectives in AI-based Mental Health Research: A Practice-based Reflective Account

The embedding of lived experience experts (LEEs) is increasingly recognized as important in research, but evidence from low- and middle-income countries (LMIC) remains sparse. This viewpoint aims to present and critically reflect on a model for integrating LEEs into the design of an artificial intelligence (AI)-based mental health (MH) study to develop an automated depression screening system in India. We report on the process of forming a diverse Lived Experience Advisory Panel (LEAP) and show how LEAP influenced methodology, system design, ethics, and language through a three-day workshop and co-design sessions. We also highlight the ethical, structural, and power-dynamic challenges encountered, demonstrating that meaningful LEE partnership is both feasible and essential for developing culturally grounded, safe, and clinically acceptable AI applications in LMIC settings.

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Publication Details

Journal
Indian Journal of Psychological Medicine
Published
2026-05-29
DOI
https://doi.org/10.1177/02537176261449058
Primary Topic
Digital Mental Health Interventions
Type
article
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article

Integrating Lived Experience Perspectives in AI-based Mental Health Research: A Practice-based Reflective Account

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Indian Journal of Psychological Medicine
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Integrating Lived Experience Perspectives in AI-based Mental Health Research: A Practice-based Reflective Account

Vikas Punia, Tathagata Mahintamani, Prakrithi Shivaprakash, Kalyani BG, Bobby Kunhu, Venkata Lakshmi Narasimha, Lekhansh Shukla, Diptadhi Mukherjee, Deepak S. Ghadigaonkar, Neha B. Kulkarni
article en

Abstract

The embedding of lived experience experts (LEEs) is increasingly recognized as important in research, but evidence from low- and middle-income countries (LMIC) remains sparse. This viewpoint aims to present and critically reflect on a model for integrating LEEs into the design of an artificial intelligence (AI)-based mental health (MH) study to develop an automated depression screening system in India. We report on the process of forming a diverse Lived Experience Advisory Panel (LEAP) and show how LEAP influenced methodology, system design, ethics, and language through a three-day workshop and co-design sessions. We also highlight the ethical, structural, and power-dynamic challenges encountered, demonstrating that meaningful LEE partnership is both feasible and essential for developing culturally grounded, safe, and clinically acceptable AI applications in LMIC settings.

Indian Journal of Psychological Medicine
Institute of Mental Health (IN), Film Independent (US), National Institute of Mental Health and Neurosciences (IN)
Partnerships for the goals
Openalex Percentile: Top 5%
Digital Mental Health Interventions
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