Integrating Lived Experience Perspectives in AI-based Mental Health Research: A Practice-based Reflective Account
The embedding of lived experience experts (LEEs) is increasingly recognized as important in research, but evidence from low- and middle-income countries (LMIC) remains sparse. This viewpoint aims to present and critically reflect on a model for integrating LEEs into the design of an artificial intelligence (AI)-based mental health (MH) study to develop an automated depression screening system in India. We report on the process of forming a diverse Lived Experience Advisory Panel (LEAP) and show how LEAP influenced methodology, system design, ethics, and language through a three-day workshop and co-design sessions. We also highlight the ethical, structural, and power-dynamic challenges encountered, demonstrating that meaningful LEE partnership is both feasible and essential for developing culturally grounded, safe, and clinically acceptable AI applications in LMIC settings.
Authors
- Vikas Punia
- Tathagata Mahintamani
- Prakrithi Shivaprakash (ORCID: https://orcid.org/0000-0001-8761-7908)
- Kalyani BG
- Bobby Kunhu
- Venkata Lakshmi Narasimha
- Lekhansh Shukla
- Diptadhi Mukherjee
- Deepak S. Ghadigaonkar (ORCID: https://orcid.org/0000-0001-8635-152X)
- Neha B. Kulkarni (ORCID: https://orcid.org/0009-0001-3040-8061)
Institutions
- Institute of Mental Health (IN)
- Film Independent (US)
- National Institute of Mental Health and Neurosciences (IN)
Publication Details
- Journal
- Indian Journal of Psychological Medicine
- Published
- 2026-05-29
- DOI
- https://doi.org/10.1177/02537176261449058
- Primary Topic
- Digital Mental Health Interventions
- Type
- article
- Field-Weighted Citation Impact
- 0.00