Defining the research agenda to measure and reduce tuberculosis stigmas

Crucial to finding and treating the 4 million tuberculosis (TB) patients currently missed by national TB programmes, TB stigma is receiving well-deserved and long delayed attention at the global level. However, the ability to measure and evaluate the success of TB stigma reduction efforts is limited by the need for additional tools. At a 2016 TB stigma-measurement meeting held in The Hague, The Netherlands, stigma experts discussed and proposed a research agenda around four themes: 1) drivers: what are the main drivers and domains of TB stigma(s); 2) consequences: how consequential are TB stigmas and how are negative impacts most felt?; 3) burden: what is the global prevalence and distribution of TB stigma(s) and what explains any variation? 4): intervention: what can be done to reduce the extent and impact of TB stigma(s)? Each theme was further subdivided into research topics to be addressed to move the agenda forward. These include greater clarity on what causes TB stigmas to emerge and thrive, the difficulty of measuring the complexity of stigma, and the improbability of a universal stigma 'cure'. Nevertheless, these challenges should not hinder investments in the measurement and reduction of TB stigma.We believe it is time to focus on how, and not whether, the global community should measure and reduce TB stigma.

Authors

Publication Details

Journal
Human Science Research Council SA
Published
2026-05-23
DOI
https://doi.org/10.14749/32382384
Primary Topic
Tuberculosis Research and Epidemiology
Type
article
Field-Weighted Citation Impact
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article

Defining the research agenda to measure and reduce tuberculosis stigmas

Human Sciences Research Council
Human Science Research Council SA
Tuberculosis Research and Epidemiology
article

Defining the research agenda to measure and reduce tuberculosis stigmas

Human Sciences Research Council
article en

Abstract

Crucial to finding and treating the 4 million tuberculosis (TB) patients currently missed by national TB programmes, TB stigma is receiving well-deserved and long delayed attention at the global level. However, the ability to measure and evaluate the success of TB stigma reduction efforts is limited by the need for additional tools. At a 2016 TB stigma-measurement meeting held in The Hague, The Netherlands, stigma experts discussed and proposed a research agenda around four themes: 1) drivers: what are the main drivers and domains of TB stigma(s); 2) consequences: how consequential are TB stigmas and how are negative impacts most felt?; 3) burden: what is the global prevalence and distribution of TB stigma(s) and what explains any variation? 4): intervention: what can be done to reduce the extent and impact of TB stigma(s)? Each theme was further subdivided into research topics to be addressed to move the agenda forward. These include greater clarity on what causes TB stigmas to emerge and thrive, the difficulty of measuring the complexity of stigma, and the improbability of a universal stigma 'cure'. Nevertheless, these challenges should not hinder investments in the measurement and reduction of TB stigma.We believe it is time to focus on how, and not whether, the global community should measure and reduce TB stigma.

Human Science Research Council SA
Good health and well-being
Openalex Percentile: Top 5%
Tuberculosis Research and Epidemiology
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Defining the research agenda to measure and reduce tuberculosis stigmas — Human Sciences Research Council · Human Science Research Council SA (2026) | TGRS Research Map | TGRS