Safeguarding engagement with under-represented groups: Ethical considerations for mitigating fraudulent participation in health research

Members of under-represented, marginalized groups experience disparate health outcomes, warranting research that improves equitable engagement in research and subsequent care practices. However, in our online study conducted during the COVID-19 pandemic, we encountered systematic signs of fraudulent behavior corroborated by recent reports from other research teams, with differing approaches to mitigating fraudulent participation. We highlight our experiences during recruitment and pilot focus groups, along with our actions for mitigating further recruitment of fraudulent participants. Then, we synthesize our learnings with other scholars’ experiences to provide recommendations for the study development, recruitment, screening, and data collection stages of research. We also offer a critical analysis of current recommendations and their implications for reinforcing barriers to engaging under-represented groups in research. The recommendations provided emphasize the importance of preventing fraudulent participation in quantitative and qualitative research through adopting multiple strategies, while balancing considerations for meaningfully engagement with under-represented groups to ensure equitable and inclusive research.

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Publication Details

Journal
Research Ethics
Published
2026-05-22
DOI
https://doi.org/10.1177/17470161261434262
Primary Topic
Focus Groups and Qualitative Methods
Type
article
Field-Weighted Citation Impact
0.00
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article

Safeguarding engagement with under-represented groups: Ethical considerations for mitigating fraudulent participation in health research

Sheila N. Garland, Jenny Duong, Tristan Bilash, Brianna Henry et al.
Research Ethics
Focus Groups and Qualitative Methods
article

Safeguarding engagement with under-represented groups: Ethical considerations for mitigating fraudulent participation in health research

Sheila N. Garland, Jenny Duong, Tristan Bilash, Brianna Henry, Iqra Rahamatullah, Caitlin Forbes, Perri R. Tutelman, Sharon Hou, Fiona S. M. Schulte, Jacqueline L. Bender
article en

Abstract

Members of under-represented, marginalized groups experience disparate health outcomes, warranting research that improves equitable engagement in research and subsequent care practices. However, in our online study conducted during the COVID-19 pandemic, we encountered systematic signs of fraudulent behavior corroborated by recent reports from other research teams, with differing approaches to mitigating fraudulent participation. We highlight our experiences during recruitment and pilot focus groups, along with our actions for mitigating further recruitment of fraudulent participants. Then, we synthesize our learnings with other scholars’ experiences to provide recommendations for the study development, recruitment, screening, and data collection stages of research. We also offer a critical analysis of current recommendations and their implications for reinforcing barriers to engaging under-represented groups in research. The recommendations provided emphasize the importance of preventing fraudulent participation in quantitative and qualitative research through adopting multiple strategies, while balancing considerations for meaningfully engagement with under-represented groups to ensure equitable and inclusive research.

Research Ethics
Memorial University of Newfoundland (CA), University of Calgary (CA), Simon Fraser University (CA), University of Toronto (CA), Alberta Children's Hospital (CA), Princess Margaret Cancer Centre (CA), BC Children's Hospital (CA)
Openalex Percentile: Top 2%
Focus Groups and Qualitative Methods
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