Fifteen years of community-engaged HIV research in Sweetwaters, KwaZulu-Natal: a reflection on principles, practices and frameworks

This chapter reflects on a practice-based community engagement (CE)2 framework that has evolved over the past 15 years in conducting HIV research in Sweetwaters. We start by providing a description of the principles that underpin our framework namely: (1) embeddedness; (2) participatory processes and relationship building; (3) recognising power differences; (4) negotiating power in communities; (5) co-creating knowledge; and (6) respecting culture, voice and local knowledge. We then demonstrate how these principles are implemented through the four phases of our community engagement framework, namely: range, recognise, recruit and retain/sustain (Fluks et al. 2020). We conclude with a theory of change that illustrates how the theory and practice of CE comes together in this community.

Authors

Publication Details

Journal
Human Science Research Council SA
Published
2026-05-22
DOI
https://doi.org/10.14749/32377443
Primary Topic
Participatory Visual Research Methods
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

Fifteen years of community-engaged HIV research in Sweetwaters, KwaZulu-Natal: a reflection on principles, practices and frameworks

Human Sciences Research Council
Human Science Research Council SA
Participatory Visual Research Methods
article

Fifteen years of community-engaged HIV research in Sweetwaters, KwaZulu-Natal: a reflection on principles, practices and frameworks

Human Sciences Research Council
article en

Abstract

This chapter reflects on a practice-based community engagement (CE)2 framework that has evolved over the past 15 years in conducting HIV research in Sweetwaters. We start by providing a description of the principles that underpin our framework namely: (1) embeddedness; (2) participatory processes and relationship building; (3) recognising power differences; (4) negotiating power in communities; (5) co-creating knowledge; and (6) respecting culture, voice and local knowledge. We then demonstrate how these principles are implemented through the four phases of our community engagement framework, namely: range, recognise, recruit and retain/sustain (Fluks et al. 2020). We conclude with a theory of change that illustrates how the theory and practice of CE comes together in this community.

Human Science Research Council SA
Openalex Percentile: Top 3%
Participatory Visual Research Methods
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.