The Use of Speculative Fiction in Future-Focused Health Care Research

Unlabelled: Health care is undergoing rapid change due to digitalization, artificial intelligence, data-driven decision-making, and shifting patient needs. These developments raise complex ethical, social, and organizational questions that cannot always be addressed by conventional research methods alone. There is a growing need for tools that help stakeholders imagine alternative futures to surface underlying values. Futures studies and speculative fiction respond to this need by presenting "what if" scenarios that make uncertain futures concrete and discussable, enabling dialogue among diverse stakeholders such as health care professionals, researchers, policy makers, and decision makers. This paper examines how speculative fiction can be used as a structured yet imaginative tool in health care research. It positions speculative fiction as a tool within futures studies and participatory research approaches, outlining its conceptual grounding and clarifying its role that stimulates interpretation and reflection within methods such as focus groups, workshops, and surveys. In this way, speculative fiction complements established approaches such as human-centered design, contextual inquiry, and value specification by addressing what does not yet exist and making abstract future issues tangible. The paper presents a case study, The Digital Data Divide, in which speculative fiction was used to explore the use of personal data in health care. Two contrasting short films were developed to stimulate dialogue and invite participants to reflect on associated values. Insights from this case are structured into a 6-step practical reporting guide: determining whether speculative fiction fits the research aim, choosing an appropriate form of speculative fiction, creating or selecting speculative scenarios, engaging participants, analyzing responses, and sharing and disseminating results. Across these steps, the paper discusses methodological and ethical considerations, including alignment between scenarios and study aims, balancing utopian and dystopian elements, questions of plausibility and interpretability, and the need for researcher reflexivity. Overall, this paper contributes to the growing discussion on future-oriented tools in health care research by showing how speculative fiction can help address complex and uncertain challenges in ways that are accessible to a wide range of stakeholders and that support dialogue across perspectives, provided that its use is ethically transparent, methodologically explicit, and carefully reported. The paper concludes with a call to other researchers to also experiment with speculative fiction and to share their experiences with the health care research community to learn and advance its use.

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Publication Details

Journal
Journal of Medical Internet Research
Published
2026-05-22
DOI
https://doi.org/10.2196/89699
Primary Topic
Participatory Visual Research Methods
Type
article
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article

The Use of Speculative Fiction in Future-Focused Health Care Research

Melissa Laurens, Sjors Groeneveld, Jobke Wentzel, Lisette van Gemert-Pijnen et al.
Journal of Medical Internet Research
Participatory Visual Research Methods
article

The Use of Speculative Fiction in Future-Focused Health Care Research

Melissa Laurens, Sjors Groeneveld, Jobke Wentzel, Lisette van Gemert-Pijnen, Harmieke van Os-Medendorp, Rudolf M Verdaasdonk, Marjolein den Ouden
article en

Abstract

Unlabelled: Health care is undergoing rapid change due to digitalization, artificial intelligence, data-driven decision-making, and shifting patient needs. These developments raise complex ethical, social, and organizational questions that cannot always be addressed by conventional research methods alone. There is a growing need for tools that help stakeholders imagine alternative futures to surface underlying values. Futures studies and speculative fiction respond to this need by presenting "what if" scenarios that make uncertain futures concrete and discussable, enabling dialogue among diverse stakeholders such as health care professionals, researchers, policy makers, and decision makers. This paper examines how speculative fiction can be used as a structured yet imaginative tool in health care research. It positions speculative fiction as a tool within futures studies and participatory research approaches, outlining its conceptual grounding and clarifying its role that stimulates interpretation and reflection within methods such as focus groups, workshops, and surveys. In this way, speculative fiction complements established approaches such as human-centered design, contextual inquiry, and value specification by addressing what does not yet exist and making abstract future issues tangible. The paper presents a case study, The Digital Data Divide, in which speculative fiction was used to explore the use of personal data in health care. Two contrasting short films were developed to stimulate dialogue and invite participants to reflect on associated values. Insights from this case are structured into a 6-step practical reporting guide: determining whether speculative fiction fits the research aim, choosing an appropriate form of speculative fiction, creating or selecting speculative scenarios, engaging participants, analyzing responses, and sharing and disseminating results. Across these steps, the paper discusses methodological and ethical considerations, including alignment between scenarios and study aims, balancing utopian and dystopian elements, questions of plausibility and interpretability, and the need for researcher reflexivity. Overall, this paper contributes to the growing discussion on future-oriented tools in health care research by showing how speculative fiction can help address complex and uncertain challenges in ways that are accessible to a wide range of stakeholders and that support dialogue across perspectives, provided that its use is ethically transparent, methodologically explicit, and carefully reported. The paper concludes with a call to other researchers to also experiment with speculative fiction and to share their experiences with the health care research community to learn and advance its use.

Journal of Medical Internet ResearchVol. 28
Windesheim University of Applied Sciences (NL), Saxion (NL), Spaarne Ziekenhuis (NL), Spaarne Gasthuis (NL), Inholland University of Applied Sciences (NL), University of Twente (NL)
Peace, Justice and strong institutions
Openalex Percentile: Top 4%
Participatory Visual Research Methods
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