Implementation of goal directed therapy and assistive devices as part of the Akwenda Intervention Program for children and young people with cerebral palsy in Uganda

PURPOSE: To describe the implementation of goal-directed therapy (GDT) and provision of assistive devices (ADs) within the Akwenda Intervention Program, a structured community-based rehabilitation program, and to examine goal attainment, AD use, and caregiver perspectives in a rural setting in eastern Uganda. MATERIALS AND METHODS: This study included 50 children and young people aged 2-23 years with cerebral palsy. The intervention formed part of an 11-month multi-component program including caregiver training, therapist-led sessions, communication and advocacy, GDT, and AD-provision. Therapists received structured training in collaborative goal setting using Goal Attainment Scaling (GAS). ADs, including wheelchairs, standing frames, posture support chairs, walkers, orthoses, and toileting devices, were provided with training and follow-up. Goal attainment was evaluated using GAS, while AD use and caregiver satisfaction were assessed through usage diaries and a structured questionnaire. RESULTS: = 0.008), but not with other child-related outcomes. Twenty-four participants received 66 ADs, of which 85% remained in use after six months. Caregiver satisfaction exceeded 80% across domains. CONCLUSION: GDT and AD-provision were feasible to implement within a community-based rehabilitation program in a rural Ugandan setting, supporting meaningful functional outcomes.

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Publication Details

Journal
Disability and Rehabilitation
Published
2026-05-19
DOI
https://doi.org/10.1080/09638288.2026.2672265
Primary Topic
Cerebral Palsy and Movement Disorders
Type
article
Field-Weighted Citation Impact
0.00

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article

Implementation of goal directed therapy and assistive devices as part of the Akwenda Intervention Program for children and young people with cerebral palsy in Uganda

Disability and Rehabilitation
Cerebral Palsy and Movement Disorders
article

Implementation of goal directed therapy and assistive devices as part of the Akwenda Intervention Program for children and young people with cerebral palsy in Uganda

article en

Abstract

PURPOSE: To describe the implementation of goal-directed therapy (GDT) and provision of assistive devices (ADs) within the Akwenda Intervention Program, a structured community-based rehabilitation program, and to examine goal attainment, AD use, and caregiver perspectives in a rural setting in eastern Uganda. MATERIALS AND METHODS: This study included 50 children and young people aged 2-23 years with cerebral palsy. The intervention formed part of an 11-month multi-component program including caregiver training, therapist-led sessions, communication and advocacy, GDT, and AD-provision. Therapists received structured training in collaborative goal setting using Goal Attainment Scaling (GAS). ADs, including wheelchairs, standing frames, posture support chairs, walkers, orthoses, and toileting devices, were provided with training and follow-up. Goal attainment was evaluated using GAS, while AD use and caregiver satisfaction were assessed through usage diaries and a structured questionnaire. RESULTS: = 0.008), but not with other child-related outcomes. Twenty-four participants received 66 ADs, of which 85% remained in use after six months. Caregiver satisfaction exceeded 80% across domains. CONCLUSION: GDT and AD-provision were feasible to implement within a community-based rehabilitation program in a rural Ugandan setting, supporting meaningful functional outcomes.

Disability and Rehabilitation
University of the Witwatersrand (ZA), Karolinska Institutet (SE), Children's & Women's Health Centre of British Columbia (CA), Mayo Clinic Health System (US), National Institutes of Health Clinical Center (US), Makerere University (UG)
Stiftelsen Promobilia, Vetenskapsrådet, Stiftelsen Frimurare Barnhuset i Stockholm, Stiftelsen Sunnerdahls Handikappfond
Openalex Percentile: Top 5%
Cerebral Palsy and Movement Disorders
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