Supporting Survivor‐Centered Care Through Digital Health Integration
Survivors of childhood cancer face barriers to receiving guideline-based, long-term follow-up care. Two digital tools, Passport for Care (PFC) and Cancer SurvivorLink (SurvivorLink), address complementary gaps by enabling tailored survivorship care plan (SCP) generation, updating, storage, and sharing. As part of a joint initiative to integrate the tools, 18 survivorship clinics using PFC and/or SurvivorLink were surveyed to assess awareness of features and preferred information dissemination strategies. Overall, awareness of core features of each tool was high, but knowledge of educational and clinician-focused resources was limited. Respondents prioritized distinct dissemination strategies for clinics, clinicians, survivors, and broader community engagement.
Authors
- A Ramírez Mendoza
- Maria Monica Gramatges (ORCID: https://orcid.org/0000-0002-0947-104X)
- Michael Palgon
- Rebecca Williamson-Lewis
- C.Michael Fordis
- Jason King
- Michael O'Connor (ORCID: https://orcid.org/0000-0002-1670-3339)
- Brian Arriaga‐Solis
- Harry Tinoco‐Giraldo
- Michael Schuckenbrock
- Yu‐Ra Kim
- Paula Edwards
- Jordan G. Marchak (ORCID: https://orcid.org/0000-0002-8747-7375)
- Karen E. Effinger (ORCID: https://orcid.org/0000-0002-9111-9191)
- Anthony Adams
- Justin Parker
Institutions
- Emory University (US)
- Baylor College of Medicine (US)
- Children's Healthcare of Atlanta (US)
- Texas Children's Hospital (US)
- Daimler (United States) (US)
Publication Details
- Journal
- Pediatric Blood & Cancer
- Published
- 2026-05-18
- DOI
- https://doi.org/10.1002/1545-5017.70418
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Agency for Healthcare Research and Quality
- National Cancer Institute