Connecting Residents and Children with Severe Neurological Impairment Using a Novel Personal History Tool

BACKGROUND: Residents lack confidence caring for children with severe neurological impairment (SNI). The novel personal history tool, SHINE (Self, Happy, Ill, Names, and Extra), was codeveloped by families and residents to strengthen residents' confidence in connecting with children with SNI and their families. OBJECTIVES: To describe SHINE's use among residents and its impact on residents' burnout, meaningful work, and confidence in caring for children with SNI. METHODS: Residents at an academic children's hospital in the United States received small-group teaching on the use of SHINE. Participants completed baseline, one-, and three-month post-intervention surveys, which included resident demographics; self-reported tool use; and resident burnout, meaningful work, and confidence in caring for children with SNI. Data were analyzed descriptively and using Pearson's chi-square tests. RESULTS: value = 0.003). Respondents reporting higher use of the tool experienced larger gains. No significant differences were seen in burnout or meaningful work. CONCLUSION: SHINE may improve resident self-reported confidence in caring for children with SNI.

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Publication Details

Journal
Journal of Palliative Medicine
Published
2026-05-12
DOI
https://doi.org/10.1177/10966218261449882
Primary Topic
Childhood Cancer Survivors' Quality of Life
Type
article
Field-Weighted Citation Impact
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article

Connecting Residents and Children with Severe Neurological Impairment Using a Novel Personal History Tool

Isabella Dahlgren, P. Anne Weisner, Dilara Onur, Kirsten Wilhelm et al.
Journal of Palliative Medicine
Childhood Cancer Survivors' Quality of Life
article

Connecting Residents and Children with Severe Neurological Impairment Using a Novel Personal History Tool

Isabella Dahlgren, P. Anne Weisner, Dilara Onur, Kirsten Wilhelm, Amy Xia, Jori F. Bogetz
article en

Abstract

BACKGROUND: Residents lack confidence caring for children with severe neurological impairment (SNI). The novel personal history tool, SHINE (Self, Happy, Ill, Names, and Extra), was codeveloped by families and residents to strengthen residents' confidence in connecting with children with SNI and their families. OBJECTIVES: To describe SHINE's use among residents and its impact on residents' burnout, meaningful work, and confidence in caring for children with SNI. METHODS: Residents at an academic children's hospital in the United States received small-group teaching on the use of SHINE. Participants completed baseline, one-, and three-month post-intervention surveys, which included resident demographics; self-reported tool use; and resident burnout, meaningful work, and confidence in caring for children with SNI. Data were analyzed descriptively and using Pearson's chi-square tests. RESULTS: value = 0.003). Respondents reporting higher use of the tool experienced larger gains. No significant differences were seen in burnout or meaningful work. CONCLUSION: SHINE may improve resident self-reported confidence in caring for children with SNI.

Journal of Palliative Medicine
Children's Hospital of Los Angeles (US), The University of Texas at San Antonio Health Science Center (US), University of Washington (US), Orthopaedic Associates of Michigan (US), Seattle Children's Hospital (US), Mary Bridge Children's Health Center (US)
Openalex Percentile: Top 3%
Childhood Cancer Survivors' Quality of Life
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